Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello Mlassen1. I've had 3 opinions from qualified oncologist and so far the best they can...

https://connect.mayoclinic.org/comment/1486701/

Discussion: Tips about preparing for my second opinion appointment at Mayo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19 4:16pm

Comment

I have the same situation but have persevered with the Lanreotide injections monthly for 6 yrs...

https://connect.mayoclinic.org/comment/964447/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 14, 2023

Comment

I have liverNET cancer. I was diagnosed almost one year ago. I had 4 intense chemo...

https://connect.mayoclinic.org/comment/963078/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2023

Comment

Good morning to (hello it’s me) I was diagnosed Dec. 2022.. started in small intestine and...

https://connect.mayoclinic.org/comment/851326/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Comment

https://connect.mayoclinic.org/discussion/is-there-a-particular-diet-to-have-when-beginning-lanreotide-injection/Reading what others have said confirms that as NET patients we are all different. I was...

https://connect.mayoclinic.org/comment/1252413/

Discussion: Is there a particular diet to have when starting Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7, 2025

Comment

I have the same cancer as you. I have been on lanreotide almost a year. So...

https://connect.mayoclinic.org/comment/1106183/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2024

Comment

I have not. Had debulking surgery and am having CT scans every three months and no...

https://connect.mayoclinic.org/comment/1038990/

Discussion: Anyone have experience with "functioning" Pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23, 2024

Comment

I’ve received 12 lanreotide injections (every 21 days) and had diarrhea and fatigue after the first...

https://connect.mayoclinic.org/comment/967418/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 19, 2023

Comment

My journey since diagnosis of pets, metastasis to liver, Jan.2025 has been monthly Lanreotide, now every...

https://connect.mayoclinic.org/comment/1329038/

Discussion: First scan after 3 months of lanreotidec

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2025

Comment

I’ve had almost 30 Lanreotide injections and have two side effects…which have dissipated overtime…bump at site...

https://connect.mayoclinic.org/comment/1166502/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2, 2024

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