Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello @wordnoid. Welcome, I'm glad to see that you have joined Mayo Connect. Thanks for your...

https://connect.mayoclinic.org/comment/127207/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2016

Comment

Hi Bob and Welcome! I read your other post regarding your insulinoma metastasis to the liver....

https://connect.mayoclinic.org/comment/806558/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2023

Comment

Nice to see another group! I started on long-acting Octreotide at the end of November and...

https://connect.mayoclinic.org/comment/134515/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2017

Comment

Thank you so much for your reply! The oncologist made me aware that DIPNECH is a...

https://connect.mayoclinic.org/comment/772281/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2022

Comment

Kwan: Based on our own experiences dealing exclusively with NET's: There may be cases in which...

https://connect.mayoclinic.org/comment/969303/

Discussion: Octreotide Injections - Skipping One or More?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2023

Comment

I also have Carcinoid Syndrome, PET scan shows it started in the small intestines and metastasized...

https://connect.mayoclinic.org/comment/878862/

Discussion: Where can I find a carcinoid syndrome specialist in Florida?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15, 2023

Comment

I was on lanreotide now on octreotide and yesterday my MRI showed my tumors are still...

https://connect.mayoclinic.org/comment/741450/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 25, 2022

Comment

Have had some minor bouts of nausea other than that I have been feeling ok. I...

https://connect.mayoclinic.org/comment/257026/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2020

Comment

I take Octreotide injection SQ three times per day. It has a similar side effect profile...

https://connect.mayoclinic.org/comment/1022152/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2024

Comment

Hi Teresa, Thanks for your concern and prayers. Yes, it will be a liver resection. The...

https://connect.mayoclinic.org/comment/637391/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2021

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