Neuroendocrine Tumors (NETs) Support Group

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Comment

It takes time for due diligence. Sometimes surgery doesn't go as planned because there wasn't enough...

https://connect.mayoclinic.org/comment/1385970/

Discussion: I saw the surgeon. More confused than ever.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 3, 2025

Comment

Thank you! I'm actually doing good with the octreotide( bi-weekly shots) and hopefully scheduled scans in...

https://connect.mayoclinic.org/comment/1000147/

Discussion: PNET on tail of pancreas with numerous bilobar hepatic metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2024

Comment

Was an insulinoma the cause for his hypoglycemia? I have not researched on Octreotide much. Was...

https://connect.mayoclinic.org/comment/895885/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2023

Comment

Yes, it came back with a vengeance, it had metastasized to peritoneal lining, liver, gallbladder, bladder,...

https://connect.mayoclinic.org/comment/1350383/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2025

Comment

@jhhaas Good idea to get a second opinion. Glad you don’t have coughing. Octreotide also helps...

https://connect.mayoclinic.org/comment/1143685/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2024

Comment

@triveraderubio I had to go back and read through this entire thread to remember what you...

https://connect.mayoclinic.org/comment/962925/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2023

Comment

Hi @californiazebra, This is my firs post here, but my diagnosis and treatment is very similar...

https://connect.mayoclinic.org/comment/1071013/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2024

Comment

i appreciate your sharing. Were your tumors growing and that is why they gave you 4...

https://connect.mayoclinic.org/comment/1344045/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 8, 2025

Comment

But what does the octreotide do to you? From what I've found when web searching, it...

https://connect.mayoclinic.org/comment/1254930/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2025

Comment

DIPNECH and lung NETs typically do have somatostatin receptors which is why I had the DOTATATE...

https://connect.mayoclinic.org/comment/1361481/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 1, 2025

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