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Neuroendocrine Tumors (NETs) Support Group

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Discussion
Pain control using a heating pad
I would like to know if it’s safe to use a hearing pad to relieve back pain due to a NET in the small intestine....
Last active: Mar 9, 2023
Discussion
Treatment for GI NET with liver mets not working: Options?
had a tumor removed from small intestine 5/2022.that metastasis to the liver started octretide shots every 28 days,shots did not work very well with the...
Last active: Mar 25, 2024
Discussion
NET in illeum, surgery or proper nutrition?!
I have been diagnosed with a small NET (6mm)in illeum of small intestine. I have a nutritionist friend who claims I can kill cancer cells...
Last active: Feb 8, 2024
Discussion
What's next after SiNETS?
After 2 years of searching. CT scans, PET scans, all negative. Finally , the very last test, I would have been cleared. After a enteroscopy...
Last active: Jul 19, 2025
Discussion
NET in jejunum spread to liver: Treatment options?
Hi Everyone,Has anyone had an NET that originated in the jejunum (small intestine) that has spread to liver? If so, I am wondering how your...
Last active: Apr 19, 2025
Discussion
Lanreotide side effects: Anyone having GI issues?
4 yrs ago routine prostate MRI showed nets in my Ilium of small intestine, surgery 2022 to remove 2 feet of small intestine and about...
Last active: Jan 11 10:11am
Discussion
NET and neuropathy
20 months after NET found in small intestine and already spread to liver. I have had resection, monthly octreotide injections, and Lutathera. The cancer seemed...
Last active: Jul 31, 2025
Discussion
Husband has miliary seeding metastasis
Hello everyone. I'm new to the journey. My husband was diagnosed last October with NETS. Surgery was done in January. During surgery seeding was seen...
Last active: Mar 1 7:25pm
Discussion
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
I have primary NET in the small intestine, spread to stomach wall and liver. I just got my 3rd monthly Somatuline (Lanreotide) injection 4/12. About...
Last active: Dec 24, 2025
Discussion
Searching for info re NETs and heart issues
I was diagnosed in Feb. 2022 with a NET tumor in the small intestine that was determined to be stage 4. I just returned for...
Last active: Feb 12, 2023