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Neuroendocrine Tumors (NETs) Support Group

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Discussion
Pain control using a heating pad
I would like to know if it’s safe to use a hearing pad to relieve back pain due to a NET in the small intestine....
Last active: Mar 9, 2023
Discussion
Treatment for GI NET with liver mets not working: Options?
had a tumor removed from small intestine 5/2022.that metastasis to the liver started octretide shots every 28 days,shots did not work very well with the...
Last active: Mar 25, 2024
Discussion
New spots showing up
Just an update….I am 72 years old with stage 4 grade 2 neuroendocrine cancer (functional but no symptoms ). Primary in my small intestine with...
Last active: Mar 16 6:25pm
Discussion
NET in illeum, surgery or proper nutrition?!
I have been diagnosed with a small NET (6mm)in illeum of small intestine. I have a nutritionist friend who claims I can kill cancer cells...
Last active: Feb 8, 2024
Discussion
NET in jejunum spread to liver: Treatment options?
Hi Everyone,Has anyone had an NET that originated in the jejunum (small intestine) that has spread to liver? If so, I am wondering how your...
Last active: Apr 19, 2025
Discussion
What's next after SiNETS?
After 2 years of searching. CT scans, PET scans, all negative. Finally , the very last test, I would have been cleared. After a enteroscopy...
Last active: Jul 19, 2025
Discussion
Lanreotide side effects: Anyone having GI issues?
4 yrs ago routine prostate MRI showed nets in my Ilium of small intestine, surgery 2022 to remove 2 feet of small intestine and about...
Last active: Jan 11 10:11am
Discussion
NET and neuropathy
20 months after NET found in small intestine and already spread to liver. I have had resection, monthly octreotide injections, and Lutathera. The cancer seemed...
Last active: Jul 31, 2025
Discussion
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
I have primary NET in the small intestine, spread to stomach wall and liver. I just got my 3rd monthly Somatuline (Lanreotide) injection 4/12. About...
Last active: May 8 1:35pm
Discussion
Searching for info re NETs and heart issues
I was diagnosed in Feb. 2022 with a NET tumor in the small intestine that was determined to be stage 4. I just returned for...
Last active: Feb 12, 2023