Neuroendocrine Tumors (NETs) Support Group

Hi there. I am posting because I really do not have much information regarding my diagnosis, and I do not have much support as my...

PNET Grade 2 (K-67 3.2%) in tail of pancreas, both portal and splenic veins. No mets to liver or spleen. Just finished 3rd round of...

Hello everyone, I am 44 y/o male. About 6 weeks ago I went into the ER for abdominal pain. My initial thought was pancreatitis because...

I am 64 and my PNET was discovered after an EUS because my gastroenterologist could not find a solution to my chronic diarrhea. I had...

After eight years (yes, eight years/ ten doctors) of chasing ULQ abdominal and back pain, I recently received a diagnosis of an ill-defined, well differentiated,...

Any one have 2 surgeries because doing it all at once would be too Much? Surgery 1: remove pancreatic tail tumor. My spleen was saved....

Has anyone else with PNET stage 4 experienced extreme pain in hands, arms and shoulders? This started up about a month ago and trying to...

It turns out that my husband has actually had this since at least 2014 when he had most of his pancreas removed as well as...

My husband has been battling pancreatitis like pain for over 2 years his symptoms have progressively gotten worse . He has substernal upper stomach pain,...

I had 2 pituitary tumor surgeries 1999 & 2000. In doing so they had to take the pituitary gland out. Now I have Pnet. How...