Neuroendocrine Tumors (NETs) Support Group

Lungs Nets biopsy typical Neuroendocrine carcinoid tumours., in 2023. Oncologist refers to them now Neuroendocrine carcinoma tumors!!!! Does she have to biopsy them again for...

My nephew recently became the third family member to have a NET diagnosis - his a Merkel Cell carcinoma. My father's was carcinoid of the...

Right middle lobectomy in Nov '24 at Mayo Scottsdale. 3 carcinoids removed were all malignant and 1 lymph node involved out of 23 taken. DIPNECH...

Hi, I was dx with pancreatic nets in 2010, had a resection in my pancreas. There were some nodules left. I had octreotide for carcinoid...

Good morning. My prayers and blessings to all on this page of interest. This is a new journey for me. Underwent a lung biopsy due...

77, female, diagnosed withNET carcinoid tumors in LLlung and left lymph nodes. No other organs lighting up on scans, of which there were many. No...

I was diagnosed last year with a lung tumor and had my left lower lobe of my lung removed. I was diagnosed with a carcinoid...

Recently I had a positive 5-HIAA urine test and a 64 CU Dotatate PET scan that lit up parts of duodenum and found a 4mm...

I had my first Chromogranin A blood test in 2021. 2 months after I had the lower lobe of my left lung removed due to...

I'm a 41 yr old male and for the last 16 months I have had almost daily flushing (face, ears, chest, upper back/shoulders) episodes along...