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Neuroendocrine Tumors (NETs) Support Group

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Discussion
NET tumor of pancreas (1 cm) diagnosed
I am 73 year old diagnosed with a 1 cm NET of pancreas that was found incidentally on a CT scan that was done for...
Last active: Sep 11 4:57pm
Discussion
Statistics on progression free survival while on SSA / Lanreotide
I have had a full whipple in March 2019. In March 2023 I was diagnosed with neuroendocrine liver metastases (NELM), Grade 2. Since June 23...
Last active: Feb 19, 2024
Discussion
Neuroendocrine Tumors (NETs) Q&A with a NETs Expert
Just watched an hour long Q&A session on NETs with Dr. Eric Liu who is dedicated to NETs at his clinic in Denver. The questions...
Last active: Jul 27 6:05pm
Discussion
NET - Insulinoma
Hello to All, I am joining this group from the Diabetes/Endocrine group. In July 2015 I was diagnosed with 2 insulinomas - both removed surgically...
Last active: Apr 8 10:12am
Discussion
PRRT for stage 4 pNET: Tips for managing complete hair loss?
After going through many years of misery & countless investigative scans, I was finally diagnosed with Stage 4 pNETs on 4 July 2023: I had...
Last active: Apr 7 12:43pm
Discussion
How do I eat after digestive tract surgery?
Perhaps you have had surgery for chronic diverticulitis, cancer of the digestive tract, a Whipple procedure, bariatric surgery, or maybe even gallbladder surgery. Surgeries of...
Support Group: Digestive Health
Last active: 6 days ago
Discussion
Just diagnosed with PNET: Any thoughts on watch & wait approach?
I am 64 and my PNET was discovered after an EUS because my gastroenterologist could not find a solution to my chronic diarrhea. I had...
Last active: Jul 14, 2025
Discussion
Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?
My husband was diagnosed with MEM and type one in 2017. He had a modified Whipple surgery in 2018 or they removed his pancreas, Splaine,...
Last active: Jan 2 10:35pm
Discussion
NET-VIPoma pancreatic tumors
Good day, After suffering for 5 years with no answers, I was diagnosed with non staged NET-VIP tumors in the pancreas in 11/2021. On 1/22...
Last active: Jan 4, 2023