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Neuroendocrine Tumors (NETs) Support Group

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Discussion
NET tumor of pancreas (1 cm) diagnosed
https://connect.mayoclinic.org/discussion/net-tumor-of-pancreas-1-cm-diagnosed/
I am 73 year old diagnosed with a 1 cm NET of pancreas that was found incidentally on a CT scan that was done for...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Jul 28, 2025
Discussion
Statistics on progression free survival while on SSA / Lanreotide
https://connect.mayoclinic.org/discussion/statistics-on-progression-free-survival-while-on-ssa-lanreotide/
I have had a full whipple in March 2019. In March 2023 I was diagnosed with neuroendocrine liver metastases (NELM), Grade 2. Since June 23...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Feb 19, 2024
Discussion
Neuroendocrine Tumors (NETs) Q&A with a NETs Expert
https://connect.mayoclinic.org/discussion/neuroendocrine-tumors-nets-qa-with-a-nets-expert/
Just watched an hour long Q&A session on NETs with Dr. Eric Liu who is dedicated to NETs at his clinic in Denver. The questions...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Feb 21, 2025
Discussion
NET - Insulinoma
https://connect.mayoclinic.org/discussion/net-insulinoma/
Hello to All, I am joining this group from the Diabetes/Endocrine group. In July 2015 I was diagnosed with 2 insulinomas - both removed surgically...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Jul 2, 2025
Discussion
Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?
https://connect.mayoclinic.org/discussion/men1/
My husband was diagnosed with MEM and type one in 2017. He had a modified Whipple surgery in 2018 or they removed his pancreas, Splaine,...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Jan 2 10:35pm
Discussion
How do I eat after digestive tract surgery?
https://connect.mayoclinic.org/discussion/how-do-i-eat-after-digestive-tract-surgery/
Perhaps you have had surgery for chronic diverticulitis, cancer of the digestive tract, a Whipple procedure, bariatric surgery, or maybe even gallbladder surgery. Surgeries of...
Support Group: Digestive Health
Last active: 9 hours ago
Discussion
Just diagnosed with PNET: Any thoughts on watch & wait approach?
https://connect.mayoclinic.org/discussion/just-diagnosed-with-pnet/
I am 64 and my PNET was discovered after an EUS because my gastroenterologist could not find a solution to my chronic diarrhea. I had...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Jul 14, 2025
Discussion
NET-VIPoma pancreatic tumors
https://connect.mayoclinic.org/discussion/net_vip-pancreatic-tumors/
Good day, After suffering for 5 years with no answers, I was diagnosed with non staged NET-VIP tumors in the pancreas in 11/2021. On 1/22...
Support Group: Neuroendocrine Tumors (NETs)
Last active: Jan 4, 2023