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Neuroendocrine Tumors (NETs) Support Group

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Discussion
Gastrinomas and Whipple procedure
Hey all, my husband has recently been diagnosed with a 4.9 cm PNet gastrinoma grade 2 stage 4. After upper gi bleed , double pulmonary...
Last active: May 2, 2025
Discussion
Whipple surgery with no chemo.
I had Whipple surgery about 8 months ago. Still having some complications, like dumping syndrome, diabetes. Does anyone eat and drink at same time? Also...
Last active: Aug 15, 2024
Discussion
Recurrence in Liver after Whipple
I had a Whipple procedure in March 2019 with no traces of NEC left behind. In Feb 2023 my scan confirmed recurrence in Liver, largest...
Last active: Apr 15, 2023
Discussion
Symptomatic after two years out from Whipple
Hello, Brittany here I had a Whipple to remove my grade two neuroendocrine tumor from the head of my pancreas. I am very lucky to...
Last active: Sep 17, 2025
Discussion
Weight Loss after Whipple: What strategies helped you?
I have been discharged from the hospital for about 5 days, have so far lost about 30 pounds. including 4 at home. What strategy has...
Last active: Mar 13, 2025
Discussion
Pancreatic Cancer: Anyone have liver metastasis after Whipple?
Looking to speak with others who have had a successful Whipple procedure, but cancer metastasized to your liver
Last active: May 8, 2025
Discussion
Ways to control hypoglycemia caused by insulinoma in pancreas?
Anyone had Whipple, still unable to control hypoglycemia. There's only so much food I can eat, and I've gained too much weight trying to control...
Last active: Jan 5, 2024
Discussion
Well defined Gastrinoma Neuroendocrine tumor
I had a Whipple surgery to remove grade 1, stage 1 well defined gastrinoma neuroendocrine tumour in May 2020 located at the pancreas head. No...
Last active: Feb 5, 2023
Discussion
New PNET
Presented to ER with shortness of breath, chest pain and severe pain to both legs. Incidentally found pancreatic Neuroendocrine tumor. Ct/MRI done and surgeon confirms...
Last active: Jul 15, 2025
Discussion
PanNET and CgA results
Good Day, It's been recently discovered that I have a tumor or lesion on my pancreas. I'm 20 years post whipple, and about 6 months...
Last active: Apr 30, 2025