Neuroendocrine Tumors (NETs) Support Group

I was recently diagnosed with PNETS saw an oncologist and had a second opinion through University of Kansas. Through that session I learned my tumors...

Does anyone understand my CT w/contrast results? Details Study Result Impression IMPRESSION: -Two 1 cm pancreatic lesions are unchanged. The lesion in the neck appears...

I had surgery to remove 3 nets from my bowel in September 2023One was attached to my pancreasThe primary was in my illeum and the...

Looking to connect with anyone who has an insulinoma. My tumor presents in the pancrease. I currently have chemotherapy bi weekly since July 2022. This...

Hello, recently diagnosed with Pancreatic NETS. Unsure of type other FNA which listed grade 1 and KI67 @ .97%. Scheduled for body and Distal surgery...

Hello the NET community, I am a 63 yr old male with generally good health and BMI. About a year and half ago I had...

Anyone with a grade 1 Panceatic NET have constant stomach pains or am I the only one? Sometimes I feel like it’s all in my...

I had two 2 cm grade 2 (well-diff) NETs removed with a distal pancreatectomy and splenectomy. So, stage 3 pancreatic cancer. Before surgery, they thought...

Hi! I had pancreatic NET surgery on Feb.1. Recovering nicely at home. Never had flushing before surgery. Now I experience flushing almost every day. Should...

Seems like my liver lesions(metastasis from tail of pancreas) are causing severe bouts of itching on my chest, legs, arms. Sometimes all over. Waiting for...