Neuroendocrine Tumors (NETs) Support Group

62 y old female, had slow growing lung nodule watched over 10+ years. Diagnosed with asthma and later COPD due to chronic cough during the...

Does anyone have experience or know recommendations to share about a timeline for flight or altitude change after a lung biopsy? I’ve read generally that...

I got Diogenes last summer, neuroendocrine Tumor in Lung with metastatic liver, start directly targeting Therapie Chemo/platinum und immutherapie (atezolizumab) 5 mounts. Now results came...

Hi every one hope ye are all doing good 🥰 ive had typical carcinoid low grand tumor removed in dec 2025 I had to have...

I'm wondering what the difference is with typical lung carcinoids and gl carcinoids?

77, female, diagnosed withNET carcinoid tumors in LLlung and left lymph nodes. No other organs lighting up on scans, of which there were many. No...

Has anyone with a lung neuroendocrine tumor experienced significant weight loss?I lost 30+ lbs during the year leading up to my diagnosis of a low-grade...

My brother has recently been diagnosed with NETs of the lung. They are lining the right side pleura, and one on the carinal lymph node....

Biopsia with VAT surgery and PET found multiple bilateral neuroendocrine lung tumors grade 1, K67 1 % . Slow growth. Blood and urine exams for...

Just diagnosed with atypical carcinoid lung tumor. I was told it is 3cm. The Doctor has recommended removing half my left lung. Still working on...