Neuroendocrine Tumors (NETs) Support Group

My husband just died Feb 19 of neuroendocrine cancer of the lung. We had an appointment scheduled at Mayo Clinic Rochester for Feb 20, but...

I had a lobectomy 6 months ago for carcinoid tumor. After my 6 month follow up CT scan they found more nodules on other lung...

Does anyone have experience or know recommendations to share about a timeline for flight or altitude change after a lung biopsy? I’ve read generally that...

I got Diogenes last summer, neuroendocrine Tumor in Lung with metastatic liver, start directly targeting Therapie Chemo/platinum und immutherapie (atezolizumab) 5 mounts. Now results came...

Just diagnosed with High-Grade Neuroendocrine Lung Carcinoma in the right lower lobe. My oncologist is recommending surgery. Anyone have a history of surgery with NETs?

Hi every one hope ye are all doing good 🥰 ive had typical carcinoid low grand tumor removed in dec 2025 I had to have...

My brother has recently been diagnosed with NETs of the lung. They are lining the right side pleura, and one on the carinal lymph node....

Biopsia with VAT surgery and PET found multiple bilateral neuroendocrine lung tumors grade 1, K67 1 % . Slow growth. Blood and urine exams for...

Just diagnosed with atypical carcinoid lung tumor. I was told it is 3cm. The Doctor has recommended removing half my left lung. Still working on...

I had a triple bypass 6 years ago and at that time they discovered lung nodule. It has been followed with CT scans & slowly...