Support Groups

Neuroendocrine Tumors (NETs) Support Group

Lock icon Public Support Group
794 total results
Discussion
Neuroendocrine Lung stage 4B with metastasis in liver
I got Diogenes last summer, neuroendocrine Tumor in Lung with metastatic liver, start directly targeting Therapie Chemo/platinum und immutherapie (atezolizumab) 5 mounts. Now results came...
Last active: Feb 7, 2023
Discussion
Anyone have lung NETs lining your pleura?
My brother has recently been diagnosed with NETs of the lung. They are lining the right side pleura, and one on the carinal lymph node....
Last active: Jul 24 4:52am
Discussion
Newly diagnosed High-Grade Neuroendocrine Lung Carcinoma
Just diagnosed with High-Grade Neuroendocrine Lung Carcinoma in the right lower lobe. My oncologist is recommending surgery. Anyone have a history of surgery with NETs?
Last active: Aug 2, 2023
Discussion
What tumor size is typical for removing part of the lung?
Just diagnosed with atypical carcinoid lung tumor. I was told it is 3cm. The Doctor has recommended removing half my left lung. Still working on...
Support Group: Lung Cancer
Last active: Feb 26, 2023
Discussion
Multiple bilateral neuroendocrine lung tumors grade 1
Biopsia with VAT surgery and PET found multiple bilateral neuroendocrine lung tumors grade 1, K67 1 % . Slow growth. Blood and urine exams for...
Last active: Jun 8, 2024
Discussion
Describe your recovery from lung NET surgery
77, female, diagnosed withNET carcinoid tumors in LLlung and left lymph nodes. No other organs lighting up on scans, of which there were many. No...
Last active: May 15, 2024
Discussion
Anyone had surgery to remove typical carcinoids of the lung?
Met with thoracic surgeon today.Two typical carcinoids in right lower lobe.He says he will have to remove the lower lobe because of where they are.Anyone...
Last active: Dec 7, 2023
Discussion
Questions I should ask before surgery for Lung NETs?
I’m scheduled for a zoom call with a nurse Jan 8 in preparation for robotic surgery of a 13mm typical neuroendocrine carcinoid. I prefer to...
Support Group: Lung Cancer
Last active: Jan 2, 2024
Discussion
NET (Lung + liver metastatis) Radical nephrectomy done for RCC
I would like to know if there is another one with same case as mine - 2 primary tumor. 1) NET lung 2) RCC recently...
Support Group: Kidney Cancer
Last active: Jan 9, 2023
Discussion
Atypical Lung NET treated with radiation: What was your outcome?
Has anyone had this LNET treated with Radiation and what was your outcome?
Last active: Mar 26 8:12pm