Neuroendocrine Tumors (NETs) Support Group

My husband just died Feb 19 of neuroendocrine cancer of the lung. We had an appointment scheduled at Mayo Clinic Rochester for Feb 20, but...

62 y old female, had slow growing lung nodule watched over 10+ years. Diagnosed with asthma and later COPD due to chronic cough during the...

Does anyone have experience or know recommendations to share about a timeline for flight or altitude change after a lung biopsy? I’ve read generally that...

I got Diogenes last summer, neuroendocrine Tumor in Lung with metastatic liver, start directly targeting Therapie Chemo/platinum und immutherapie (atezolizumab) 5 mounts. Now results came...

I'm wondering what the difference is with typical lung carcinoids and gl carcinoids?

77, female, diagnosed withNET carcinoid tumors in LLlung and left lymph nodes. No other organs lighting up on scans, of which there were many. No...

Hi every one hope ye are all doing good 🥰 ive had typical carcinoid low grand tumor removed in dec 2025 I had to have...

Has anyone with a lung neuroendocrine tumor experienced significant weight loss?I lost 30+ lbs during the year leading up to my diagnosis of a low-grade...

I had a RML lobectomy and RLL basilar segmentectomy in September of 2025What is the surveillance protocol forTypical Lung Neuroendocrine CancerKI67 of 3 percentLymp nodes...

My brother has recently been diagnosed with NETs of the lung. They are lining the right side pleura, and one on the carinal lymph node....