Neuroendocrine Tumors (NETs) Support Group

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Comment

Ps- my symptoms primarily are shortness of breath on exertion, like climbing stairs a lot or...

https://connect.mayoclinic.org/comment/1209863/

Discussion: Diagnosed with DIPNECH yesterday!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12 11:41am

Comment

Hi , welcome to the DIPNECH club 🥴. You’ve come to the right place! I also...

https://connect.mayoclinic.org/comment/1392355/

Discussion: Biopsy showed DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: 4 days ago

Comment

Hello @marciamiller and welcome to Mayo Connect. I am glad that you found this forum. DIPNECH...

https://connect.mayoclinic.org/comment/1163824/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 28, 2024

Comment

Hi - I’m new here. But I saw your question. I was diagnosed this summer with...

https://connect.mayoclinic.org/comment/974003/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 2, 2023

Comment

May I refer to you as California? Thank you for your input. My first lobectomy was...

https://connect.mayoclinic.org/comment/1224839/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29 2:34pm

Comment

Your English is great and your story was easy to follow. Definitely do all the monitoring...

https://connect.mayoclinic.org/comment/1237831/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15 8:42pm

Comment

It is interesting, isn’t it? However, I didn’t have those allergy symptoms like sneezing, etc. several...

https://connect.mayoclinic.org/comment/1205467/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6 4:22pm

Comment

Hi @peggymariejackson as I mentioned in another one of your posts, I have lung NETs --...

https://connect.mayoclinic.org/comment/861009/

Discussion: Dying from car accident can cause death more so this cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

Comment

Sorry your going through this. Thanks for your response. If you do not mind, I would...

https://connect.mayoclinic.org/comment/1055029/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2024

Comment

Hi @pammy229 I’m glad you decided to go to Mayo and will undoubtedly be hooked up...

https://connect.mayoclinic.org/comment/1198299/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

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