Neuroendocrine Tumors (NETs) Support Group

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Comment

Diagnosed with NELM 2017 with unknown primary, well differentiated grade 2 in liver and abdominal area....

https://connect.mayoclinic.org/comment/998435/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16 12:19pm

Comment

A convincing announcement and animation of Histotripsy and liver cancer at the Univ of Chigo online....

https://connect.mayoclinic.org/comment/1023927/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 27 6:13pm

Comment

Hello @maryluph1953 I see that you are in the process of treatment for Merkel Cell Carcinoma...

https://connect.mayoclinic.org/comment/1155843/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 12 11:09am

Comment

Sorry to read about your circumstance. My NET is a Insulinoma, pancreas to liver, also too...

https://connect.mayoclinic.org/comment/874444/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2023

Comment

They suspect my brother may have some but haven't done anything for them yet, as I...

https://connect.mayoclinic.org/comment/877312/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Comment

How old is your wife? I'm 55yr old Male and I had a SI resection, primary...

https://connect.mayoclinic.org/comment/994044/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8 7:11pm

Comment

I had a very small carcinoid tumor removed in 2015 on my first colonoscopy that was...

https://connect.mayoclinic.org/comment/1146694/

Discussion: After initial tests/consults at Mayo: When does NETs treatment start?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24 1:44pm

Comment

Hi, PNet is one that starts in the pancreas then spreads to other parts like the...

https://connect.mayoclinic.org/comment/1071577/

Discussion: pNET with liver metastases: What is necrosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20 10:39am

Comment

I am right with you with your feelings. I had stage 4 Neuroendocrine cancer of small...

https://connect.mayoclinic.org/comment/163994/

Discussion: The Roller Coaster Ride of Cancer

Support Group: Cancer

Posted: Dec 4, 2019

Comment

Kim, I remember. Thanks for asking. I stopped taking temozolomide about 5 months ago and now...

https://connect.mayoclinic.org/comment/1038499/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22 5:21pm

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