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Discussions (191)
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Comment
Thank you Giness for your kind words. Yes, it is scary esp when there is no...
https://connect.mayoclinic.org/comment/764699/
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Discussion:
Prognosis for Metastasized NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 23, 2022
Comment
Hello @christine714 I would like to join @colleenyoung and @sophiarose in welcoming you to Connect. I...
https://connect.mayoclinic.org/comment/750331/
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Discussion:
Newly diagnosed with NET in liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 16, 2022
Comment
Since my diagnosis in 2002 at Mayo Clinic, I have had surgery to remove appendix, gallbladder,...
https://connect.mayoclinic.org/comment/137542/
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Discussion:
My Husband was newly diagnosed with Carcinoid Cancer
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 15, 2017
Comment
I was diagnosed with carcinoid cancer in 2003. I am still receiving 1 sandostation injection every...
https://connect.mayoclinic.org/comment/773744/
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Discussion:
Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 16, 2022
Comment
I understand that metastasis means it's spread. What bothers me is his initial oncologist told him...
https://connect.mayoclinic.org/comment/762162/
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Discussion:
Prognosis for Metastasized NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 17, 2022
Comment
Hi @hopeful33250. Our story is a lot of drama so far. Around Christmas my husband had...
https://connect.mayoclinic.org/comment/872940/
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Discussion:
Carcinoid liver cancer/carcinoid heart disease/ kidney damage
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 5, 2023
Comment
Im not sure. All I know is I had neuroendocrine cancer spread to my liver as...
https://connect.mayoclinic.org/comment/1289961/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 25 8:11pm
Comment
I'm glad that my description of the "day in the life of Lutethera " will help...
https://connect.mayoclinic.org/comment/995251/
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Discussion:
Update: Lutethera treatment is over
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 10, 2024
Comment
Original site small intestine/appendix with first surgery in 2004 (they thought it was an appendicitis but...
https://connect.mayoclinic.org/comment/1233382/
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Discussion:
How does Alcohol use affect Liver NET?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 10 3:55am
Comment
@briea Welcome to the Mayo Clinic Connect. You will find lots of support and people who...
https://connect.mayoclinic.org/comment/914666/
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Discussion:
Anyone with an insulinoma have only therapies instead of surgery?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 17, 2023
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