Neuroendocrine Tumors (NETs) Support Group

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Comment

Thank you. So you live in the Bay Area? I am having a consult with Natalie...

https://connect.mayoclinic.org/comment/992623/

Discussion: Anyone have neuroendocrine tumor (NETs) of the breast?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6 3:30pm

Comment

Hello, I have a stage 3 lung NET. I found a lot of good information on...

https://connect.mayoclinic.org/comment/998253/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16 9:20am

Comment

After rangaling for a year between removing my left and living with tumors(3, 1 calcified), I've...

https://connect.mayoclinic.org/comment/1003342/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25 7:01am

Comment

I have the same problem as you and always have low blood sugar syndrome. I tried...

https://connect.mayoclinic.org/comment/1088375/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17 8:17am

Comment

Hi @dipnech67 I would be happy to speak with you. I just sent you a private...

https://connect.mayoclinic.org/comment/1055386/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22 1:41pm

Comment

Thank you for getting back to me. UMASS. Net specialist are not helpful. 74 yrs old,...

https://connect.mayoclinic.org/comment/1054704/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21 10:28am

Comment

Gig666, I am somewhat appalled that your docs didn't give you more options rather than just...

https://connect.mayoclinic.org/comment/1054944/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21 7:44pm

Comment

Hello All: For those of you who have had surgery for NETs in the thoracic area...

https://connect.mayoclinic.org/comment/631580/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 31, 2021

Comment

I’m so sorry you’re going through this. I know it’s scary and there’s so much to...

https://connect.mayoclinic.org/comment/1112706/

Discussion: GI Net stage 4 advanced: Is it incurable?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27 10:57am

Comment

Hello @lynn99 and welcome to Mayo Connect. When you say, "It's pretty scary" most of us...

https://connect.mayoclinic.org/comment/998813/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17 8:11am

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