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Discussions (27)
Comments (206)
Comment
Hello @panorman3 and welcome to the NETs support group on Mayo Connect. You say in your...
https://connect.mayoclinic.org/comment/1247054/
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Discussion:
My carcinoid tumor is inoperable: What are the best ways to control?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 28 7:06am
Comment
Hi @breck You’ve been through a lot. Sorry to hear they did not get it all....
https://connect.mayoclinic.org/comment/1169807/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 7, 2024
Comment
It can sure be a frustrating journey to diagnosis, can’t it? Glad they figured yours out...
https://connect.mayoclinic.org/comment/1171342/
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Discussion:
How many doctors did you see to get to your NETS diagnosis?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 10, 2024
Comment
Hello @aulynn and welcome to the NETs support group on Mayo Connect. I'm so glad that...
https://connect.mayoclinic.org/comment/1161114/
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Discussion:
New DIPNECH diagnosis, need advice on doctors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 22, 2024
Comment
Hello @lrittmiller and welcome to the NETs support group on Mayo Connect. We have many members...
https://connect.mayoclinic.org/comment/1107836/
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Discussion:
DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 18, 2024
Comment
I went to Mayo for a 2nd opinion because the University of Minnesota was trying to...
https://connect.mayoclinic.org/comment/1088194/
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Discussion:
On choosing a surgeon for pulmonary carcinoid resection…
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 16, 2024
Comment
I did 5 year watch on my lung nodules. then accidentally with through CAT scan two...
https://connect.mayoclinic.org/comment/1057169/
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Discussion:
Lung nodule could be slow growing carcinoid: Watch and wait is scary
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 25, 2024
Comment
@ant12 One more thing, lanreotide/octreotide injections can really help with carcinoid syndrome -- the flushing, diarrhea,...
https://connect.mayoclinic.org/comment/1033639/
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Discussion:
High risk surgery. Is it worth it?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 14, 2024
Comment
What is the difference with Atypical Nets. And typical? This is gig666/ have they say just...
https://connect.mayoclinic.org/comment/1029596/
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Discussion:
High risk surgery. Is it worth it?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 8, 2024
Comment
My sister is still in hospital being treated for inflammation of pericardium, complication after right lung...
https://connect.mayoclinic.org/comment/1024416/
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Discussion:
Atypical pulmonary carcinoid
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 28, 2024
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