Neuroendocrine Tumors (NETs) Support Group

Hello everyone, My name is larry from Dallas, Texas. 09/2020 I found a mass in my left neck and Biopsy showed NET stage 4. My...

I have two tumors in body of pancreas 1.4 cm and a 6 mm. One was biopsies and apparently it’s a NET. Was told to...

I have had CLL since 1996 and during the years had oral chemo 3 times to regulate white blood count, but for about 8 years...

I was told yesterday that my NET has spread to my spine L1 and my periportal lymph node I did Lanreotide and Ocreotide injections for...

My husband is under 40, and a recent scan showed that his cancer has progressed to his liver after having his colon removed last year...

Any one have 2 surgeries because doing it all at once would be too Much? Surgery 1: remove pancreatic tail tumor. My spleen was saved....

My sister has Grade 3 pancreatic neuroendocrine tumor with liver nodules. She was initially treated with CapTem, but it didn’t work, so the doctor switched...

There seems to be a general distrust of all doctors. That is sad. No matter how much homework I do, no matter how much I...

Hello, recently diagnosed with Pancreatic NETS. Unsure of type other FNA which listed grade 1 and KI67 @ .97%. Scheduled for body and Distal surgery...

Hi there, I was recently diagnosed with a Neuroendocrine tumor in my rectum. After a rectal biopsy and correlating morphology and Immunohistochemistry, the diagnosis was...