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Discussions (191)
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Comment
@pontiac - thanks for your post! I completely understand your frustrations! After my Whipple procedure in...
https://connect.mayoclinic.org/comment/831222/
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Discussion:
Neuroendocrine Insulinoma: Is treatment different for this type?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 24, 2023
Comment
@bnjncrew - welcome to the NET insulinoma group. There are several on or around this page...
https://connect.mayoclinic.org/comment/831029/
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Discussion:
Neuroendocrine Insulinoma: Is treatment different for this type?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 24, 2023
Comment
I had liver scans & surgery as a first step since I had been undiagnosed to...
https://connect.mayoclinic.org/comment/789953/
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Discussion:
NETs: Anyone has Liver debulking for liver metastasis?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 29, 2022
Comment
Three tests were done - Sept 2015, April 2016 and Oct 2016. The Sept 2015 showed...
https://connect.mayoclinic.org/comment/283430/
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Discussion:
NETest from WREN Labs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 23, 2020
Comment
Hi Anita, Thanks for your story. And sorry, but welcome to the “club”. Sounds like you...
https://connect.mayoclinic.org/comment/1355169/
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Discussion:
My journey to here...
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 24 8:11am
Comment
He was diagnosed in December 2019, had surgery in March 2020, I think the first six...
https://connect.mayoclinic.org/comment/899229/
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Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 20, 2023
Comment
My condition is similar stage 4 due to it metastasizing to the liver, origin is the...
https://connect.mayoclinic.org/comment/1106025/
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Discussion:
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 15, 2024
Comment
It took me years to come across my own course of action. And my doctors were...
https://connect.mayoclinic.org/comment/1011819/
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Discussion:
Prognosis for Metastasized NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 8, 2024
Comment
They map your liver about 30 days before the treatment I have tumors on both sides...
https://connect.mayoclinic.org/comment/1039825/
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Discussion:
Anyone have experience with "functioning" Pancreatic NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 25, 2024
Comment
The same week I met with the Dr at Dana Farber the first of September 2022...
https://connect.mayoclinic.org/comment/885611/
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Discussion:
Feeling discouraged and too many specialists
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 26, 2023
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