Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi @hopeful33250. Our story is a lot of drama so far. Around Christmas my husband had...

https://connect.mayoclinic.org/comment/872940/

Discussion: Carcinoid liver cancer/carcinoid heart disease/ kidney damage

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2023

Comment

@hopeful33250 Hi Teresa, You are correct that they did not suggest surgery for me. The reason...

https://connect.mayoclinic.org/comment/861413/

Discussion: Net unknown cause of breathing problems

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

Comment

Hi tatteesmom3, are you seeing a NETS (neuroendocrine tumor) multidisiciplinary team or just a local oncologist...

https://connect.mayoclinic.org/comment/844936/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

Comment

In ‘07 I had a bronchial Carcinoid tumor removed. It is very slow growing but when...

https://connect.mayoclinic.org/comment/831739/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Comment

Hello @pattirushing and welcome to the NETs discussion on Mayo Clinic Connect. If you are comfortable...

https://connect.mayoclinic.org/comment/831600/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Comment

Recent diagnosed with lung nodule on lower left lobe 9mm first opinion says watch / wait...

https://connect.mayoclinic.org/comment/831587/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Comment

First time here and would appreciate any info from folks with a similiar issue. I had...

https://connect.mayoclinic.org/comment/811885/

Discussion: Carcinoid tumor of the appendix.PET scan results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Comment

Welcome @tufan, I'm sorry to hear that treatment thus far has not slowed the progression of...

https://connect.mayoclinic.org/comment/801569/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2023

Comment

@arnana54, welcome. Carcinoid tumors are slow growing neuroendocrine tumors. If they spread it is most typically...

https://connect.mayoclinic.org/comment/794083/

Discussion: Carcinoid Syndrome: Can it spread to the head?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8, 2023

Comment

Hello @kathryncd and welcome to Mayo Connect. I am sorry to hear of this new finding...

https://connect.mayoclinic.org/comment/764453/

Discussion: NED GI NETS since 2012. New finding on annual chest CT, Tubular Mucoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2022

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