Neuroendocrine Tumors (NETs) Support Group

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Comment

I've had 17 lanreotide injections. one every 3 weeks. i still have all my hair. i...

https://connect.mayoclinic.org/comment/1011155/

Discussion: Anyone have hair loss with lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7 10:40am

Comment

I thought, What if my diagnosis is a 30 day expected shelf life. That appointment is...

https://connect.mayoclinic.org/comment/1000177/

Discussion: Possible NET: Waiting for the endo appointment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19 2:33pm

Comment

Hi. I have been experiencing excruciating and debilitating joint and muscle pain for several months now....

https://connect.mayoclinic.org/comment/289800/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2020

Comment

I have stage 3 NET cancer and had a large tumor in my small intestine removed,...

https://connect.mayoclinic.org/comment/942886/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2023

Comment

Hello @sylvian and welcome to the NETs discussion on Mayo Clinic Connect. As you can see,...

https://connect.mayoclinic.org/comment/827446/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

Comment

Good morning The surgeon has very straightforward and honest. He said that surgery is the best...

https://connect.mayoclinic.org/comment/913416/

Discussion: How do I know somatostatin is in my system?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2023

Comment

Thank you Phyllisden, yes l saw my two doctors oncologists, and thorax thoracic surgeon. They said...

https://connect.mayoclinic.org/comment/1062199/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4 4:04pm

Comment

I am doing better thanks. I was sick for years before getting diagnosed. Covid didn't help....

https://connect.mayoclinic.org/comment/1040151/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25 3:33pm

Comment

Sorry your going through this. Thanks for your response. If you do not mind, I would...

https://connect.mayoclinic.org/comment/1055029/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22 4:43am

Comment

Hello, Carrie, My name is Lucy and I'm having my first surgery this month on the...

https://connect.mayoclinic.org/comment/760371/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 12, 2022

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