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Discussions (26)
Comments (200)
Comment
Hi @rogo It seems like we’ve communicated in the past. I have DIPNECH and lung NETs...
https://connect.mayoclinic.org/comment/1070950/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 19, 2024
Comment
@rogo, I believe you are referring to lung carcinoid tumors with Diffuse Idiopathic Pulmonary NeuroEndocrine Cell...
https://connect.mayoclinic.org/comment/1070380/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 18, 2024
Comment
A small nodule was discovered incidentally in an x-ray 10 years ago in my left lower...
https://connect.mayoclinic.org/comment/1056356/
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Discussion:
Lung nodule could be slow growing carcinoid: Watch and wait is scary
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 24, 2024
Comment
@auntiemum, I've added your discussion to the Neuroendocrine Tumors (NETs) Support Group as well. See a...
https://connect.mayoclinic.org/comment/1045834/
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Discussion:
Atypical carcinoid tumour of the lung
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 5, 2024
Comment
I did 5 rounds of sbrt for a lung carcinoid. It went very well and destroyed...
https://connect.mayoclinic.org/comment/1025801/
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Discussion:
My husband has had his second PRRT and is doing well!
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 2, 2024
Comment
Is there a pet scan That cat scan the body to see if there are any...
https://connect.mayoclinic.org/comment/1022418/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 25, 2024
Comment
Remember to read the posts from the discussion group in my previous post, @gig666. You will...
https://connect.mayoclinic.org/comment/1022138/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 25, 2024
Comment
I also had sbrt radiation for lung carcinoids a year ago and have been on monthly...
https://connect.mayoclinic.org/comment/1003928/
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Discussion:
Atypical Lung NET treated with radiation: What was your outcome?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 26, 2024
Comment
I had been diagnosed with 2 carcinoid tumors ...one in the lower lobe and one in...
https://connect.mayoclinic.org/comment/974703/
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Discussion:
Anyone with carcinoid tumors in lung and stomach?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 4, 2023
Comment
Hello I too have a NET tumor on my left lung that has metastasized to my...
https://connect.mayoclinic.org/comment/955119/
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Discussion:
Newly diagnosed-Primary Malignant Neuroendocrine of Lung
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 28, 2023
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