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Discussions (128)
Comments (1,498)
Comment
Hello, I had surgery in June to remove a tumor and then found out it spread...
https://connect.mayoclinic.org/comment/940026/
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Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 1, 2023
Comment
Bob, To provide some additional information. . . I have had 2 surgeries - a modified...
https://connect.mayoclinic.org/comment/806975/
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Discussion:
Pancreatic neuroendocrine insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 6, 2023
Comment
Hello, here is an update. Sept 21 heart surgery to replace two valves in my heart....
https://connect.mayoclinic.org/comment/182057/
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Discussion:
Mayo Presentation at the Northwoods NETs group - 1/14/18
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 25, 2018
Comment
My sister was diagnosed with PNET. They went in to do the surgery to remove half...
https://connect.mayoclinic.org/comment/780856/
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Discussion:
Pancreatic NF-NET stable since 2005 - surgery or not?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 4, 2022
Comment
Hi Marlene [and all], I also live in Massachusetts and am going to Dana Farber. As...
https://connect.mayoclinic.org/comment/806596/
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Discussion:
Pancreatic neuroendocrine insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 5, 2023
Comment
I have had three cycles, so far, of Lutathera, starting in December 2022. and have my...
https://connect.mayoclinic.org/comment/859738/
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Discussion:
4 treatment options from my doctor, which one should I start with?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 14, 2023
Comment
I was diagnosed with Carcinoid Cancer w/an unknown primary in 2003. For 3 years I was...
https://connect.mayoclinic.org/comment/746044/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 6, 2022
Comment
Hello I have had about 16 rounds of chemo..happening every two weeks. The primary tumor is...
https://connect.mayoclinic.org/comment/807274/
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Discussion:
Pancreatic neuroendocrine insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 6, 2023
Comment
@keeper3102 Hi Lucy! I’m sorry I just saw your message now. Yes I’ll add you to...
https://connect.mayoclinic.org/comment/765123/
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Discussion:
Neuroendocrine Carcinoma with Liver Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 25, 2022
Comment
I haven’t had any problems with pain. My biggest problem is with Neuropathy in my hands...
https://connect.mayoclinic.org/comment/834575/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 30, 2023
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