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2,251 total results
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Discussions (190)
Comments (2,061)
Comment
Hi, I too have NETs that were discovered in my ileum after being in the ER...
https://connect.mayoclinic.org/comment/777826/
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Discussion:
NETs: Anyone has Liver debulking for liver metastasis?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 27, 2022
Comment
Hello Karen (@kjstein) Welcome to Mayo Clinic Connect! I am glad to hear that you have...
https://connect.mayoclinic.org/comment/713478/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 2, 2022
Comment
I, too, have high grade (2/3) metastatic NETs—liver, pancreas, lungs, bone, adrenal gland, parotid gland. I...
https://connect.mayoclinic.org/comment/811356/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 14, 2023
Comment
I have 20 to 30 Mets to the liver. Have done PRRT, lanriotide, and captem. All...
https://connect.mayoclinic.org/comment/1336778/
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Discussion:
Y90 AND Captem Combo
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 28 5:21am
Comment
How old are you? Why is surgery not an option ? Im 55yr old male. I...
https://connect.mayoclinic.org/comment/917185/
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Discussion:
Laparoscopic Possible Open Surgery Resection - Small Bowel NETS
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 22, 2023
Comment
I’m so glad you reached out to us with your swelling concerns. My treatment of Somatuline...
https://connect.mayoclinic.org/comment/883717/
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Discussion:
Anyone have swelling with liver metastases?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 23, 2023
Comment
We did not have a choice with a mass on pancreas. Had to remove tail, spleen...
https://connect.mayoclinic.org/comment/842059/
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Discussion:
Who has had Distal Pancreatectomy and regretted it?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 12, 2023
Comment
I also had multiple small lesions in my liver and a few larger ones. I decided...
https://connect.mayoclinic.org/comment/813447/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 18, 2023
Comment
Great info and of course I’m sorry for all you’ve been through. I have not had...
https://connect.mayoclinic.org/comment/796507/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 14, 2023
Comment
Oncologists always say no it seems. Next step-see a noted surgeon who deals with liver/pancreas in...
https://connect.mayoclinic.org/comment/1314636/
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Discussion:
Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29
Support Group:
Pancreatic Cancer
Posted: May 28 7:31am
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