Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello! I have been there :). My pNet was discovered incidentally during a stroke work-up. Along...

https://connect.mayoclinic.org/comment/1061285/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3, 2024

Comment

Thank you for your reply. Your action plan sounds sound. I am trying to convince my...

https://connect.mayoclinic.org/comment/1356785/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 26 9:45am

Comment

Hello, my tumor was discovered by accident while they were checking for kidney stones. My symptom...

https://connect.mayoclinic.org/comment/711583/

Discussion: Pancreatic NF-NET stable since 2005 - surgery or not?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2022

Comment

I have a 1cm PNET in the tail of my pancreas as well. I would strongly...

https://connect.mayoclinic.org/comment/798724/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2023

Comment

Hi! I live in Calgary and I have Stage 4 pNET with overwhelming liver mets. My...

https://connect.mayoclinic.org/comment/1204588/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5 12:42pm

Comment

Hi. I guess my original post was confusing. I had a PNet resected and now I...

https://connect.mayoclinic.org/comment/880746/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2023

Comment

Hello Bridget1980 I am 44 Y/O and I was diagnosed with PNET on 11/27/22. I also...

https://connect.mayoclinic.org/comment/801102/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 24, 2023

Comment

Hello! Welcome to the ' zebra club' :). I had somewhat complicated case , as had...

https://connect.mayoclinic.org/comment/1074310/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2024

Comment

@jsudjian He said the doctor also suspected the rash was due to arthritis, but his labs...

https://connect.mayoclinic.org/comment/1401078/

Discussion: So, now just still waiting, losing my mind being worried and new quest

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25 10:47am

Comment

Thanks for sharing. There is a lot of great information here. I am grade 2 pnet...

https://connect.mayoclinic.org/comment/1291042/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 27 10:15am

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