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Neuroendocrine Tumors (NETs) Support Group

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Discussion
Small bowel NET and colon cancer
I am 51 and had my first colonoscopy. One polyp with cancer was discovered and removed. The standard practice it to conduct a CT scan...
Last active: Mar 19, 2024
Discussion
Primary Small Bowel NETS, Liver Mets
I’ve included a photo of my liver Mets in case others are interested in what it actually looks like. Photo was taken by NETS surgeon...
Last active: Dec 23, 2025
Discussion
Diagnosing small bowel NETs with carcinoid syndrome
I have 2 questions about diagnostic tests. 1. Is oral barium contrast safe with a suspected or possible partial small intestinal obstruction? I'm concerned the...
Last active: Mar 19, 2025
Discussion
Neuroendocrine tumor in small bowel with lymph nodes involved
Hello there, Anyone with small bowel carcinoma with lymph nodes involved? I was diagnosed with NETs of small bowel carcinoma stage 3, grade 1 on...
Last active: Jun 5, 2023
Discussion
Small Bowel Neuroendocrine Cancer, Metastasis to Mesentery Recurrence?
I was diagnosed in ‘21 (51 y/o) with SB net and metastatic tumor in the mesentery lymph nodes. All successfully resected. The metastasis in mesentery...
Last active: May 26, 2025
Discussion
NETS Mesentery, Small Bowel Resection, Lanreotide, Octreotide, Story
Maybe my story helps somebody. I've had well differentiated Nets for a while now. A review early last year of a 2019 CT confirmed mesenteric...
Last active: Jul 27, 2024
Discussion
I have a neuroendocrine tumour in the small bowel and liver lesions
I have been waiting for surgery to remove a neuro endocrine tumour(NET) in the small bowel and lesions in the liver.
Last active: Oct 28, 2025
Discussion
Laparoscopic Possible Open Surgery Resection - Small Bowel NETS
Hello All I just discovered this NETS support group and happy to be here. I am recently diagnosed with NETS in small bowel which was...
Last active: Apr 21, 2024
Discussion
Good news on 6-month follow-up for Small bowel NET with mets
Small bowel Nets with Mets, Grade 2, stage 4. I just had my 6 month follow up scan & the news is great! I have...
Last active: Feb 11 11:04am
Discussion
NETs: Scheduled for small intestine resection: What to expect?
I was diagnosed with NET 2 weeks ago. I had symptoms of obstructed bowel which led to a CT scan showing a tumor in mesentery,...
Last active: Apr 3, 2025