Neuroendocrine Tumors (NETs) Support Group

My understanding was that flushing only happened with those who have GI NETS. However, I have developed something very weird in the last 8 months...

Hi, I live in part of the U.k. and had an op to remove an atypical carcinoid tumour from my inferior lobe at the end...

Way back in 2007 I was diagnosed with sarcoidosis in my lungs. At that time they mentioned a nodule of 8 mm in my left...

At the moment, I have only one lung net in my right lung. The last two days I have been having severe discomfort in my...

I'm wondering what the difference is with typical lung carcinoids and gl carcinoids?

I’m a 78 year old female. Carcinoid tumor found in upper lymphnoids and LL lung. Also told nodule found in stomach. Not sure of difference...

My husband just died Feb 19 of neuroendocrine cancer of the lung. We had an appointment scheduled at Mayo Clinic Rochester for Feb 20, but...

I am newly diagnosed with Neuroendocrine tumor of lung. I have been monitoring a lung node in the lung since 2017 with no change, until...

@tufan and anyone else who can be helpful please My wife has been diagnosed with NET Lung and liver metastasis (stage 4) early December 2022....

I had a triple bypass 6 years ago and at that time they discovered lung nodule. It has been followed with CT scans & slowly...

I had a lobectomy 6 months ago for carcinoid tumor. After my 6 month follow up CT scan they found more nodules on other lung...

Does anyone have experience or know recommendations to share about a timeline for flight or altitude change after a lung biopsy? I’ve read generally that...

I got Diogenes last summer, neuroendocrine Tumor in Lung with metastatic liver, start directly targeting Therapie Chemo/platinum und immutherapie (atezolizumab) 5 mounts. Now results came...

Just diagnosed with High-Grade Neuroendocrine Lung Carcinoma in the right lower lobe. My oncologist is recommending surgery. Anyone have a history of surgery with NETs?

My brother has recently been diagnosed with NETs of the lung. They are lining the right side pleura, and one on the carinal lymph node....

Biopsia with VAT surgery and PET found multiple bilateral neuroendocrine lung tumors grade 1, K67 1 % . Slow growth. Blood and urine exams for...

Just diagnosed with atypical carcinoid lung tumor. I was told it is 3cm. The Doctor has recommended removing half my left lung. Still working on...

77, female, diagnosed withNET carcinoid tumors in LLlung and left lymph nodes. No other organs lighting up on scans, of which there were many. No...

Met with thoracic surgeon today.Two typical carcinoids in right lower lobe.He says he will have to remove the lower lobe because of where they are.Anyone...

I’m scheduled for a zoom call with a nurse Jan 8 in preparation for robotic surgery of a 13mm typical neuroendocrine carcinoid. I prefer to...