Neuroendocrine Tumors (NETs) Support Group

After many years of misdiagnosis, I've definitively been diagnosed with DIPNECH and will be having a neuroendocrine tumor, lymph nodes, and half of the LUL...

I received the results of a lung biopsy last week & it showed DIPNECH. I see an oncologist next week to discuss treatment options. Pulmonologist...

Senior diagnosed with DIPNECH July 2022, breast cancer August 2023 and endometrium cancer (hysterectomy) December 2023. Under treatment for all. Now just told that new...

I was diagnosed with DIPNECH at National Jewish Health 3/23. Two months later, I had a lumpectomy on my breast. The pathology came back with...

Right middle lobectomy in Nov '24 at Mayo Scottsdale. 3 carcinoids removed were all malignant and 1 lymph node involved out of 23 taken. DIPNECH...

I have written on this form before. I am 71 and was diagnosed with very slow growing neuroendocrine tumors on my lungs 8 years ago....

Good morning. My prayers and blessings to all on this page of interest. This is a new journey for me. Underwent a lung biopsy due...

Hi everyone. I’ve been reading comments the past few days but this is my first post. My mother who is 69 years old was just...

I was diagnosed with DIPNECH a few days ago, following lung biopsies. I will be having a second PET scan, called Detectnet Dotatate on August...

Most of what I am reading about DIPNECH deals with people who have not progressed as far as I have. I've been on supplementary oxygen...

I had a lobectomy after a biopsy showed my nodule was malignant. It turned out to be typical carcinoid. Also that I have DIPNECH. My...

One doctor suggested that I have DIPNECH I do have small carcinoids throughout my lungs. They were discovered when an Adenocarcinoma and my top right...

Just watched an hour long Q&A session on NETs with Dr. Eric Liu who is dedicated to NETs at his clinic in Denver. The questions...

I was diagnosed last year with a lung tumor and had my left lower lobe of my lung removed. I was diagnosed with a carcinoid...