Neuroendocrine Tumors (NETs) Support Group

It’s been a long path, years of flushing, stomach cramps and diarrhea that came and went with no warning or explanation. Had a resection of...

I am seeking input about experiences with losing the tail of the pancreas and spleen. Has this been the right choice for you? I will...

Sorry if this has been discussed before, but I was interested in hearing peoples experience with PRRT (Peptide Receptor Radionuclide Therapy)? I live in Georgia...

I’m scheduled for a zoom call with a nurse Jan 8 in preparation for robotic surgery of a 13mm typical neuroendocrine carcinoid. I prefer to...

Maybe this is rant post, but my mom aged 56 has been having diarrhoea and flushing since past 7 months and I've seen three gastroenterologists,...

I have been able to get by day to day with my presciption for Tincture of Opium (Paragoric). This is the miracle drug, I have...

I would be curious to see if there are any laymen articles regarding the use of FDG PET scan vs. the Dotatate PET scan. In...

To those in our Mayo Connect Carcinoid/NET group, @amyh2439 @tresjur @joannem @gaylejean @lucci50 @derekd @gulzar @joanney @jenchaney727@dzerfas @lorettanebraska @wordnoid @trouble and @upblueeyes @ahtaylor @heidilynn4 @junebug15....

It's extremely difficult to face the fact of recurring cancers. After treatments we try and get away from it all and live our life. Then...

Hello all, I’ve noticed that there have been quite a few questions on here about what to eat and what to avoid when you have...

With the implementation of the 'Plummer Project', moving all Mayo health records to the Epic system (from GE), a $1.5 billion project, I wonder what...

Hello everyone, @amyh2439 @joannem @gaylejean @lucci50 @derekd @gulzar @joanney @jenchaney727@dzerfas @lorettanebraska @wordnoid @upblueeyes @ahtaylor @heidilynn4 @tresjur @colleenyoung @smness, I just received another email regarding a...

Hello ! Here is an update about what we discussed last week. I had an appointment ( second opinion) yesterday at Dana Faber. At least...

Born 1968 lived with Neuroblastoma 2 years. The tumors where the size of a baseball and 2 bananas along side my backbone. I had rare...

Mayo Clinic's Cancer Education Center just uploaded a new self-learning course to help people (patients and caregivers) living with cancer to manage stress.You can work...

I was recently diagnosed with a Carotid Body Tumor. I live in Ohio and there isn't anyone that is experienced in my diagnosis. I am...

Hi, I live in part of the U.k. and had an op to remove an atypical carcinoid tumour from my inferior lobe at the end...

Hello! I am 43 F and having episodes of hypoglycemia for years that have gotten more frequent. I’m also constantly hungry. I mentioned this to...

We all know what hiccups are, right? They are involuntary contractions of the diaphragm — the muscle that separates your chest from your abdomen and...