Neuroendocrine Tumors (NETs) Support Group

Hi everyone i was diagnosed w a carcinoid tumor of the appendx. It was removed 8 m again along w my rt colon. Fast forward...

Hello all, I wanted to start a discussion on a finding from a CT Scan I had yesterday and hope I am in the right...

We are traveling to Mayo from Indiana. My wife needs surgery to remove a carcinoid tumor from her right lung. We have an appointment for...

Hello All! I have had flushing for several years with alcohol, stress, emotions, heat/exercise, and some other foods. I also have cyclical diarrhea. In the...

Has anyone had experience with a Liver Transplant that has Neuroendocrine NET? My wife after chemo, surgery, PRRT, etc was suggested my our medical team...

I am interested in hearing people’s experiences with cabozantinib. I was diagnosed January 2020, grade 3, well-differentiated, unknown primary with tumors in liver, pancreas, lungs,...

Does anyone have long term experience with larger appendix tumors? Especially women in relation to gynecological issues? My appendix tumor was well-differentiated and slow growing...

NET, the TP crisis, a rant and a little humorI’m sure the irony of the TP “shortage” is not lost on most of us. As...

Lungs Nets biopsy typical Neuroendocrine carcinoid tumours., in 2023. Oncologist refers to them now Neuroendocrine carcinoma tumors!!!! Does she have to biopsy them again for...

Was diagnosed with NET last year, have been getting Lanreotide injections every 28 days plus Everolimus medication everyday Dr stopped Everolimus in September because i...

I have recently been diagnosed with the Differentiated Adenocarcinoma with Neuroendocrine Differentiations in the Gallbladder, Liver, and parts of right and left Abdomen. I have...

I was diagnosed with NETs in 2021. My case was deemed unusual since it's only on the liver. According to my oncologist and from what...

What am I missing? I have been feeling sick for 7 months, basically life has stopped. They have done many many testings on me and...

What is my life expectancy as a result of my NET? Diagnosed 3 years ago with Grade 1, Stage 4 NETs. Primary tumor is probably...

Hi, I was dx with pancreatic nets in 2010, had a resection in my pancreas. There were some nodules left. I had octreotide for carcinoid...

Hi I’m a 42 year old female who had an upper left lobectomy in March of 2024 for neuroendocrine cancer. I was healing well but...

HelloMy father, mid 60's, non smoker, fit and healthy, underwent a lower left lobe lobectomy approx 1 month ago. He is recovering very well. The...

Good morning.I mentioned a while back that I was diagnosed with Malignant Neuroendocrine of the Lungs and have been undergoing Sandostatin LAR 30 mg/28 days...

I'm a 41 yr old male and for the last 16 months I have had almost daily flushing (face, ears, chest, upper back/shoulders) episodes along...

Last week I woke up with a swollen arm and went to the ER as I was also very weak. I was diagnosed 9/24 with...