Support Groups

Neuroendocrine Tumors (NETs) Support Group

Public Support Group
1,626 total results
Discussions (128)
Liver mets mistaken as hemangioma or harmatoma on MRI
Did anyone have liver mets from NET that were mistaken for hemangioma or harmatoma on MRI? How small were the liver spots found with PETCT...
Last active: Sep 25, 2022
Lesions, Cystic liver mets, vs Tumors
Could someone please explain the difference between lesions, cystic lesions and tumors. I have gone to multiple websites to clarify my best friend's last MRI....
Last active: Mar 2, 2023
NET lung with Liver Metastasis (stage 4)
@tufan and anyone else who can be helpful please My wife has been diagnosed with NET Lung and liver metastasis (stage 4) early December 2022....
Last active: Apr 20 9:33pm
Lost with no confirmation of NETs origin: Innumerable liver lesions
Hi, my dad-active 63 year old kept complaining of boating and dull stomach pain. I am a nurse but am not very familiar with oncology...
Last active: Mar 31, 2023
Treatment for GI NET with liver mets not working: Options?
had a tumor removed from small intestine 5/2022.that metastasis to the liver started octretide shots every 28 days,shots did not work very well with the...
Last active: Mar 25 3:33pm
Neuroendocrine Lung stage 4B with metastasis in liver
I got Diogenes last summer, neuroendocrine Tumor in Lung with metastatic liver, start directly targeting Therapie Chemo/platinum und immutherapie (atezolizumab) 5 mounts. Now results came...
Last active: Feb 7, 2023
Experience w/ watch and wait approach for metastatic liver tumor
I have grade 2, stage IV neuroendocrine tumor in the liver, KI-67 6-8%. 4x3.1 cm mass plus additional small tumors. Differentiated and non-functioning. No origin...
Last active: Nov 10 5:44pm
Carcinoid liver cancer/carcinoid heart disease/ kidney damage
Hi, I am looking for information and advice. On May 25,2017 I was diagnosed with carcinoid liver cancer. However, Carcinoid had already attacked my heart...
Last active: Jun 5, 2023
New to NETs: Found lesions on liver during a health check
Went in for a healthy heart check and during ultrasound they saw spots on my liver. Had in quick order CT, biopsy, bone scan. Confirmed...
Last active: Jun 23, 2022
I have a neuroendocrine tumour in the small bowel and liver lesions
I have been waiting for surgery to remove a neuro endocrine tumour(NET) in the small bowel and lesions in the liver.
Last active: Mar 2 1:15pm
Straight to the liver: Anyone have NETs originating in strange areas?
I was diagnosed with NETs in 2021. My case was deemed unusual since it's only on the liver. According to my oncologist and from what...
Last active: Oct 4 6:02am
Liver neuroendocrine tumors: I would like to talk with others
I will like to know mora about i live in colombia Please i will like to talk with some one with the same
Last active: Jan 9, 2022
NET (Lung + liver metastatis) Radical nephrectomy done for RCC
I would like to know if there is another one with same case as mine - 2 primary tumor. 1) NET lung 2) RCC recently...
Support Group: Kidney Cancer
Last active: Jan 9, 2023
more info on gasstric NET w/liver mets and progression of symptoms
Hello I am new to the site. My 74 y/o husband is diagnosed with stage 4 gastric carcinoid tumor transverse colon which was partially resected...
Last active: Jul 15, 2023
After liver embolization: Looking for the best diet + food suggestions
We are looking for the best diet or food suggestions for after liver embolization. There is no nausea but still very weak. Monthly lanreotide shots...
Last active: Dec 11, 2023
Merkel cell-radiation effective on chest-new 2 cm spot on liver
Hi, I'm Kate. Age 49. I was diagnosed with Merkel Cell 4/6/22. Lesion on chest that spread near collarbone. Had surgery and multiple imaging showed...
Last active: Oct 2, 2023
Should NET w/liver met patient stop rx that has Seratonin?
I have received Samotuline Depot injections every 28 days for a year. I have avoided Serotonin in my diet, but do I also need to...
Last active: Dec 7, 2023
Stopping Octreotide???
My liver enzymes are very elevated Not sure if it is from my Bland Embolization I had done in January Or from my 9 rounds...
Last active: 6 days ago
PRRT treatment how does it work?
My husband has small bowel Neuroendocrine cancer that had metastasized to liver, lymph nodes,and bones he had surgery to remove primary tumor in small bowel,...
Last active: Jun 28 2:13pm
Spreading NET
Just a up date on my journey of net been on my shots octretide for two yrs. had four treatment of prrt, not going very...
Last active: May 22 9:47am