Neuroendocrine Tumors (NETs) Support Group

@tufan and anyone else who can be helpful please My wife has been diagnosed with NET Lung and liver metastasis (stage 4) early December 2022....

had a tumor removed from small intestine 5/2022.that metastasis to the liver started octretide shots every 28 days,shots did not work very well with the...

Hi, my dad-active 63 year old kept complaining of boating and dull stomach pain. I am a nurse but am not very familiar with oncology...

About one month ago I received bland embolization for NETs in my liver. The fatigue post op has been almost debilitating. I’m looking for anyone...

Looks like this is the place to ask if anyone has been thru this.My mother was diognosed in March with a 5cm low grade NET...

Hi everyone. I am new to the group and wondered what kinds of symptoms others with Pnet go through. I was diagnosed just under a...

Started Octreotide shot in Dec. Labs show Bilirubin going from .7 to 1.1 to 1.5 in three months, iron is 25 and % saturation is...

I got Diogenes last summer, neuroendocrine Tumor in Lung with metastatic liver, start directly targeting Therapie Chemo/platinum und immutherapie (atezolizumab) 5 mounts. Now results came...

Looking to speak with others who have had a successful Whipple procedure, but cancer metastasized to your liver

How much is too much? How does it effect Liver NET?

3 years ago, I had surgery to remove the duodenal NET diagnosed as grade 3 and poorly differentiated. After recovering from surgery, I had 6...

Went in for a healthy heart check and during ultrasound they saw spots on my liver. Had in quick order CT, biopsy, bone scan. Confirmed...

I have been waiting for surgery to remove a neuro endocrine tumour(NET) in the small bowel and lesions in the liver.

I was diagnosed with NETs in 2021. My case was deemed unusual since it's only on the liver. According to my oncologist and from what...

I have read that MRI's provide better imaging for liver. Wondering what three month follow up imaging people are having for metastatic liver neuroendocrine tumors.

Hi, I am looking for information and advice. On May 25,2017 I was diagnosed with carcinoid liver cancer. However, Carcinoid had already attacked my heart...

I will like to know mora about i live in colombia Please i will like to talk with some one with the same

I would like to know if there is another one with same case as mine - 2 primary tumor. 1) NET lung 2) RCC recently...

I have grade 2, stage IV neuroendocrine tumor in the liver, KI-67 6-8%. 4x3.1 cm mass plus additional small tumors. Differentiated and non-functioning. No origin...

We are looking for the best diet or food suggestions for after liver embolization. There is no nausea but still very weak. Monthly lanreotide shots...