Neuroendocrine Tumors (NETs) Support Group

Hi Everyone,Has anyone had an NET that originated in the jejunum (small intestine) that has spread to liver? If so, I am wondering how your...

Has anyone heard of Histotripsy? It's a technique that uses sound waves to break down tumors for liver treatment.

Hello, I was diagnosed with liver mets from ileocecal primary. I am scheduled for primary site removal next month, but the liver is still undecided....

I've had a deep and persistent cough, often at night, which doesn't allow me to sleep, or sleep soundly. The cough initially hurt my throat...

Hi, I was just diagnosed with pancreatic NET (17mm) and was told that I should get a surgery to cut it out asap. Did a...

Had what I thought was a bad stomach bug, turned out to be a neoindicrine tumor blocking my small intestine with lymph node involvement. Had...

@tufan and anyone else who can be helpful please My wife has been diagnosed with NET Lung and liver metastasis (stage 4) early December 2022....

Did anyone have liver mets from NET that were mistaken for hemangioma or harmatoma on MRI? How small were the liver spots found with PETCT...

Could someone please explain the difference between lesions, cystic lesions and tumors. I have gone to multiple websites to clarify my best friend's last MRI....

I was recently diagnosed with stage 4 neuroendocrine tumors on my liver.I went to the Dr. for abdominal pain and after cat scans and a...

had a tumor removed from small intestine 5/2022.that metastasis to the liver started octretide shots every 28 days,shots did not work very well with the...

What are people's experiences with PRRT or peptide receptor radionuclide therapy for neuroendocrine tumors of the liver?

Seems like my liver lesions(metastasis from tail of pancreas) are causing severe bouts of itching on my chest, legs, arms. Sometimes all over. Waiting for...

I got Diogenes last summer, neuroendocrine Tumor in Lung with metastatic liver, start directly targeting Therapie Chemo/platinum und immutherapie (atezolizumab) 5 mounts. Now results came...

Looking to speak with others who have had a successful Whipple procedure, but cancer metastasized to your liver

About one month ago I received bland embolization for NETs in my liver. The fatigue post op has been almost debilitating. I’m looking for anyone...

Has anyone out there tried Histotripsy for tumors in the liver? What were the results, where was it done, and most importantly did your insurance...

Looks like this is the place to ask if anyone has been thru this.My mother was diognosed in March with a 5cm low grade NET...

Hi, my dad-active 63 year old kept complaining of boating and dull stomach pain. I am a nurse but am not very familiar with oncology...

Hi everyone. I am new to the group and wondered what kinds of symptoms others with Pnet go through. I was diagnosed just under a...