Connect
Public Support Group 2,509 total results
Discussions (210)
What's the best way to detect liver metastases?
Hi, I was just diagnosed with pancreatic NET (17mm) and was told that I should get a surgery to cut it out asap. Did a...
Anyone heard about Histotripsy for liver NETs?
Has anyone heard of Histotripsy? It's a technique that uses sound waves to break down tumors for liver treatment.
NETs with Liver metastasis: starting lanreotide injections
Had what I thought was a bad stomach bug, turned out to be a neoindicrine tumor blocking my small intestine with lymph node involvement. Had...
Liver NETs: Anyone has extreme swelling in feet and ankles?
My husband has significant liver tumors. Almost 80% disease in liver. He is currently being treated in GA, but we live in south AL. He...
NET lung with Liver Metastasis (stage 4)
@tufan and anyone else who can be helpful please My wife has been diagnosed with NET Lung and liver metastasis (stage 4) early December 2022....
Liver mets mistaken as hemangioma or harmatoma on MRI
Did anyone have liver mets from NET that were mistaken for hemangioma or harmatoma on MRI? How small were the liver spots found with PETCT...
Lesions, Cystic liver mets, vs Tumors
Could someone please explain the difference between lesions, cystic lesions and tumors. I have gone to multiple websites to clarify my best friend's last MRI....
Treatment for GI NET with liver mets not working: Options?
had a tumor removed from small intestine 5/2022.that metastasis to the liver started octretide shots every 28 days,shots did not work very well with the...
Bland Embolization in Liver: Fatigue post-op is debilitating
About one month ago I received bland embolization for NETs in my liver. The fatigue post op has been almost debilitating. I’m looking for anyone...
Has anyone out there tried Histotripsy for tumors in the liver?
Has anyone out there tried Histotripsy for tumors in the liver? What were the results, where was it done, and most importantly did your insurance...
NET on liver: Question about treatments when no symptoms
Looks like this is the place to ask if anyone has been thru this.My mother was diognosed in March with a 5cm low grade NET...
Lost with no confirmation of NETs origin: Innumerable liver lesions
Hi, my dad-active 63 year old kept complaining of boating and dull stomach pain. I am a nurse but am not very familiar with oncology...
Neuroendocrine Lung stage 4B with metastasis in liver
I got Diogenes last summer, neuroendocrine Tumor in Lung with metastatic liver, start directly targeting Therapie Chemo/platinum und immutherapie (atezolizumab) 5 mounts. Now results came...
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Hi everyone. I am new to the group and wondered what kinds of symptoms others with Pnet go through. I was diagnosed just under a...
Liver function (birirubin, globulin, glucose, iron) and Octreotide
Started Octreotide shot in Dec. Labs show Bilirubin going from .7 to 1.1 to 1.5 in three months, iron is 25 and % saturation is...
How does Alcohol use affect Liver NET?
How much is too much? How does it effect Liver NET?
I have a neuroendocrine tumour in the small bowel and liver lesions
I have been waiting for surgery to remove a neuro endocrine tumour(NET) in the small bowel and lesions in the liver.
Straight to the liver: Anyone have NETs originating in strange areas?
I was diagnosed with NETs in 2021. My case was deemed unusual since it's only on the liver. According to my oncologist and from what...
Lymph nodes removed during surgery removing tumors in the liver
I have received different information about removing lymph nodes when a surgery is done to remove tumors in the liver. I have an unknow origin...
Pancreatic Cancer: Anyone have liver metastasis after Whipple?
Looking to speak with others who have had a successful Whipple procedure, but cancer metastasized to your liver
Connect