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Public Support Group 934 total results
Discussions (74)
Anyone have side effects after Lanreotide injection?
I have been doing injection for a year now but as of a few months ago after the injection I am feeling very sluggish, and...
Scan shows interval progression on lanreotide: Is CAPTEM next?
If first scan shows interval progression while on lanreotide only, is captem the next step? Seeing doctor Monday)
Is there a particular diet to have when starting Lanreotide injection?
I will begin my Lanreotide injections tomorrow afternoon. Is there anything to be concerned about? Were you able to drive home? How did you feel...
Lanreotide shot given too fast, any side effects?
I was given Lanreotide injection to fast last month. I had horrible side effects from it I ended up in emergency. Sick all month. Has...
NETS Mesentery, Small Bowel Resection, Lanreotide, Octreotide, Story
Maybe my story helps somebody. I've had well differentiated Nets for a while now. A review early last year of a 2019 CT confirmed mesenteric...
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
I have primary NET in the small intestine, spread to stomach wall and liver. I just got my 3rd monthly Somatuline (Lanreotide) injection 4/12. About...
Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide
I was diagnosed late February 2025 by liver lesion biopsy with neuroendocrine grade 2, well differentiated. Ga68 Dotatate Pet scan end of March confirmed pancreas...
First Lanreotide Injection: Any tips about diet and side effects?
Good morning, I am an 81 yr old female & was diagnosed with stage 4 NETS in my liver metastasized from my lung in Dec...
PET Ga-68 Scan Scheduling vs. Most Recent Lanreotide Injection
I was just scheduled for a PET scan 1 week following my last Ipsen (long lasting) lanreotide injection. Separately, I have read that the scan...
Cost of treatment
I am currently living in Panama, without insurance and have been diagnosed with NETS, biopsied and they believe its origin is the small intestine ....
How long do I wait between injections and PET scans.
What is the wait period between the PET scan and my next Lanreotide injection? I had to wait 36 days before my last injection and...
Anyone still have pancreas pain while taking Lanteotide?
I have had three Lanreotide injections and it seems that my symptoms have gotten a little worse with the pancreas pain and some spleen issues....
Newly diagnosed-Primary Malignant Neuroendocrine of Lung
I am newly diagnosed with Neuroendocrine tumor of lung. I have been monitoring a lung node in the lung since 2017 with no change, until...
Everolimus/ Afinitor experience/side effects
Starting Everolimus later this week due to progression after 3 months of Lanreotide. Planning to stay on Lanreotide while on Everolimus. What are your experiences...
Should NET w/liver met patient stop rx that has Seratonin?
I have received Samotuline Depot injections every 28 days for a year. I have avoided Serotonin in my diet, but do I also need to...
First scan after 3 months of lanreotidec
My partner has pancreatic NET, grade 2 stage 4 w metastases in liver - she is having first post diagnosis scan after 3 months lanreotide....
Help understand interval progression
First scan after 4 lanreotide monthly shots for pancreatic net grade 2 stage 4 w liver (both lobes) metastases. Advice on understanding interval progression and...
Secondary adrenal insufficiency
I had a pituitary tumor partially removed. Doctor decided to indefinitely treat the remaining portion with Lanreotide. I have had and continue to significant symptoms...
NET related side effect constipation
My partner has recently been diagnosed with stage 4, grade 2 pancreatic origin NET. She started lanreotide & is experiencing diarrhea but then painful problematic...
Procedures?
Was diagnosed with NET last year, have been getting Lanreotide injections every 28 days plus Everolimus medication everyday Dr stopped Everolimus in September because i...
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