Neuroendocrine Tumors (NETs) Support Group

To those in our Mayo Connect Carcinoid/NET group, @amyh2439 @tresjur @joannem @gaylejean @lucci50 @derekd @gulzar @joanney @jenchaney727@dzerfas @lorettanebraska @wordnoid @trouble and @upblueeyes @ahtaylor @heidilynn4 @junebug15....

It's extremely difficult to face the fact of recurring cancers. After treatments we try and get away from it all and live our life. Then...

Hello all, I’ve noticed that there have been quite a few questions on here about what to eat and what to avoid when you have...

With the implementation of the 'Plummer Project', moving all Mayo health records to the Epic system (from GE), a $1.5 billion project, I wonder what...

Hello ! Here is an update about what we discussed last week. I had an appointment ( second opinion) yesterday at Dana Faber. At least...

Born 1968 lived with Neuroblastoma 2 years. The tumors where the size of a baseball and 2 bananas along side my backbone. I had rare...

Mayo Clinic's Cancer Education Center just uploaded a new self-learning course to help people (patients and caregivers) living with cancer to manage stress.You can work...

I was recently diagnosed with a Carotid Body Tumor. I live in Ohio and there isn't anyone that is experienced in my diagnosis. I am...

Sorry I missed the group last night I so wanted to make it home from the dentist to discuss my situation I have a functioning...

Hi, I live in part of the U.k. and had an op to remove an atypical carcinoid tumour from my inferior lobe at the end...

Hello! I am 43 F and having episodes of hypoglycemia for years that have gotten more frequent. I’m also constantly hungry. I mentioned this to...

We all know what hiccups are, right? They are involuntary contractions of the diaphragm — the muscle that separates your chest from your abdomen and...

Hi, I am struggling. I just had my 6 month surveillance mri for my pancreatic net. (It has been 3 years since my distal pancrectomy...

Fairly new to this forum as I navigate the slow process of diagnosing or definitively ruling out an Insulinoma. First visit with an endocrinologist last...

After going through many years of misery & countless investigative scans, I was finally diagnosed with Stage 4 pNETs on 4 July 2023: I had...