Neuroendocrine Tumors (NETs) Support Group

I would like to share some of my symptoms I experienced when I was first diagnosed with High Grade Neuroendocrine Carcinoma in my parotid gland....

I was diagnosed with metastatic neuroendocrine cancer in the liver 4cm x 3.1 cm in Sept. Grade 2, non-functioning, well differentiated KCI 6-8%. My MRI...

I just wanted to share that one of the most helpful aspects of my cancer journey has been the two friends that I have found...

Up until recently I have been posting under Blood disorders, because I was overloaded with IV iron infusions by a careless doctor who gave me...

my mom has been fighting a pancreatic neuroendocrine insulinoma, well differentiated grade 3 tumor in her pancreas with metastasis to her liver for the last...

I went on 1/3 for my first preventative colonoscopy. I was scared to death as I am a worry wort lol. Colonoscopy went fine only...

Hello everyone. I am new to this site and this is my first post. I had a routine colonoscopy in March and found that I...

My husband was diagnosed with MEM and type one in 2017. He had a modified Whipple surgery in 2018 or they removed his pancreas, Splaine,...

Does anyone have long term experience with larger appendix tumors? Especially women in relation to gynecological issues? My appendix tumor was well-differentiated and slow growing...

Hi all,I was diagnosed six weeks ago with NET after a small bowel blockage. NG tube and a ton of pain meds relieved my symptoms...

Day 24 of a hospitalization in New Mexico — one of the worst medical states in the country. Not enough providers. Not enough care. And...

Hi UK based where mcas is poorly understood I have been diagnoses with autoimmune gastritis in the last few weeks Symptoms over the last few...

Hello, my fellow NETS friends, My name is Eileen. I am 42 years old and incidentally discovered I have Stage 4/Grade 1 NETS when I...

Last week I woke up with a swollen arm and went to the ER as I was also very weak. I was diagnosed 9/24 with...

Hi guys, I'm very sorry for those ofyou dealing with NETs. Well, I've been in the habit of drinking a few drinks or so nightly...

Number 1......I have realized my stool has been kind of chunky and yellowish for a couple months.......so I read that can be from stress alone,...

Hello all. My Info. (Retired 2022. ECMO Specialist Perfusion/Registered Respiratory Therapist and 35 years in Critical healthcare)Severe Asthma(environmental) my whole life. Never smoked. A glass...

Hi everyone i was diagnosed w a carcinoid tumor of the appendx. It was removed 8 m again along w my rt colon. Fast forward...

Hello all,MARK your calendars! The "2026 Know Your NETsVirtual Patient and Caregiver ConferenceSaturday July 18, 2026 | 11 AM - 4 PM ETIf you would...

So, I'm writing this on behalf of my mom. She was first diagnosed with pancreatic neuroendocrine cancer in Sept/2019, because of the extent of the...