Neuroendocrine Tumors (NETs) Support Group

Hey all, I’m struggling with pain and could use some support.I had a LEEP surgery 5 months ago which began a daily battle with severe...

My husband was diagnosed with carcinoid on 1/18/17. He had surgery on 2/3/17 to remove 18" of his ileum small intestine (36 small tumors were...

I had my first Lanreotide injection four days ago on Monday, but was not told of any diet restrictions. I've seen that I should eat...

Hello. I was diagnosed with NETs in February 2023: stage 4, grade 2, well-differentiated low-grade primary 5cm tumor in small intestine, Ki-67 5.4%, with METs...

Hello to all of you who have had cancer diagnosis and treatments.The past couple of months I have been on a roller coaster ride with...

I would like to share some of my symptoms I experienced when I was first diagnosed with High Grade Neuroendocrine Carcinoma in my parotid gland....

I was diagnosed with metastatic neuroendocrine cancer in the liver 4cm x 3.1 cm in Sept. Grade 2, non-functioning, well differentiated KCI 6-8%. My MRI...

I was dx'd with a SBNET at the ileocecal valve 3 wks ago and will schedule surgery this week. I live alone and have so,...

Hi, everyone. I was diagnosed on July 17 with small bowel NET at the ilealcecal valve. I had been having GI trouble for well over...

Up until recently I have been posting under Blood disorders, because I was overloaded with IV iron infusions by a careless doctor who gave me...

my mom has been fighting a pancreatic neuroendocrine insulinoma, well differentiated grade 3 tumor in her pancreas with metastasis to her liver for the last...

I am on a hunt to find further information and folks who are dealing with a wide variety of Carcinoid Syndrome symptoms. My local oncologist...

Hello everyone. I am new to this site and this is my first post. I had a routine colonoscopy in March and found that I...

My husband was diagnosed with MEM and type one in 2017. He had a modified Whipple surgery in 2018 or they removed his pancreas, Splaine,...

Hi all,I was diagnosed six weeks ago with NET after a small bowel blockage. NG tube and a ton of pain meds relieved my symptoms...

Does anyone have long term experience with larger appendix tumors? Especially women in relation to gynecological issues? My appendix tumor was well-differentiated and slow growing...

Hi UK based where mcas is poorly understood I have been diagnoses with autoimmune gastritis in the last few weeks Symptoms over the last few...

Hello, my fellow NETS friends, My name is Eileen. I am 42 years old and incidentally discovered I have Stage 4/Grade 1 NETS when I...

Last week I woke up with a swollen arm and went to the ER as I was also very weak. I was diagnosed 9/24 with...

Hi guys, I'm very sorry for those ofyou dealing with NETs. Well, I've been in the habit of drinking a few drinks or so nightly...