Dealing with Carcinoid Syndrome Symptoms

Posted by maeve115 @maeve115, 5 hours ago

I am on a hunt to find further information and folks who are dealing with a wide variety of Carcinoid Syndrome symptoms. My local oncologist was not aware that excess mucus was a particular symptom of the lung tumor. He knew the regulars for the small bowel and so on. It was my optometrist who prescribed Miebo for the mucus in the eyes and brought relief. I am looking forward to this learning experience.
Am interested in others'symptoms and solutions, especially for those hormonal hangovers! Here is the event I will attend with zoom:
Aug 27, 2026 Thursday 1:30 PM Pacific Time "When Hormones Interfere With Quality of Life in Neuroendocrine Cancers" Register at the Neuroendocrine Cancer Foundation https://www.ncf.net/

Join Jaydira Del Rivero, medical oncologist and endocrinologist at the National Cancer Institute, for a discussion on how hormones can affect quality of life in people living with neuroendocrine cancer. Topics will include thyroid disorders, hormone-related side effects from immunotherapy, hormone replacement therapies, GLP-1 medications, and practical considerations for managing hormone-related symptoms and concerns.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

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