Neuroendocrine Tumors (NETs) Support Group

Presented to ER with shortness of breath, chest pain and severe pain to both legs. Incidentally found pancreatic Neuroendocrine tumor. Ct/MRI done and surgeon confirms...

My partner (grade 2, stage 4 PNET) has an unrelated tooth implant to do & that involves mixing bone & blood to build up the...

Hello everyone, I have surgery coming at the end of this month for a PNET on my pancreas. Dr’s will be performing spleenectomy and distal...

I found out there is a 8mm pNET at the tail in the beginning of September. The Ga68 PET scan is negative. My appointment with...

Hi! During a stroke work up a CT scan on my chest discovered a 16 cm mass in my abdomen. Multiple MRI, CT, PET (Gadolinium)...

I had a distal pancreatomy with splenectomy on March 10th for NET in pancreas. All was well. Good recovery. Went on Monday for my 6months...

Started Everolimus for pancreatic Neuroendocrine cancer with Mets to liver and bone diagnosed four years ago. Was 49 when diagnosed. Had TACEx4, IV radiation(PRRT) x4,...

Hi,I was diagnosed with Pnet grade 2 level 4 in February. I had my first pet scan last Wednesday but haven't been able to talk...

Hello everyone, yesterday on February 24,2023 I underwent a distal pancrectomy and a spleenectomy. I am am posting this comment from my hospital room. I...

The Seena Magowitz Foundation for pancreatic cancer patient advocacy has announced a newly created monthly support group for Pancreatic Neuroendocrine Tumors. The Zoom meeting is...

Hi there. I am posting because I really do not have much information regarding my diagnosis, and I do not have much support as my...

PNET Grade 2 (K-67 3.2%) in tail of pancreas, both portal and splenic veins. No mets to liver or spleen. Just finished 3rd round of...

Hello everyone, I am 44 y/o male. About 6 weeks ago I went into the ER for abdominal pain. My initial thought was pancreatitis because...

I am 64 and my PNET was discovered after an EUS because my gastroenterologist could not find a solution to my chronic diarrhea. I had...

After eight years (yes, eight years/ ten doctors) of chasing ULQ abdominal and back pain, I recently received a diagnosis of an ill-defined, well differentiated,...

Any one have 2 surgeries because doing it all at once would be too Much? Surgery 1: remove pancreatic tail tumor. My spleen was saved....

Has anyone else with PNET stage 4 experienced extreme pain in hands, arms and shoulders? This started up about a month ago and trying to...

It turns out that my husband has actually had this since at least 2014 when he had most of his pancreas removed as well as...

My husband has been battling pancreatitis like pain for over 2 years his symptoms have progressively gotten worse . He has substernal upper stomach pain,...

I had 2 pituitary tumor surgeries 1999 & 2000. In doing so they had to take the pituitary gland out. Now I have Pnet. How...