Neuroendocrine Tumors (NETs) Support Group

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Comments (234)

@nannybb oh my word!!!! I am sending love during this difficult period. I do not know...

https://connect.mayoclinic.org/comment/1438650/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: 23 hours ago

Good morning 3 years ago I had an Adenocarcinoma tumor removed from my right upper lobe....

https://connect.mayoclinic.org/comment/1438478/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: 1 day ago

I am currently having SBRT to radiate 2 carcinoid lung tumors that are 1.5 cm. They...

https://connect.mayoclinic.org/comment/838553/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2023

Hi @shella, I wanted to make sure you saw the helpful post from @merpreb. I have...

https://connect.mayoclinic.org/comment/815207/

Discussion: What tumor size is typical for removing part of the lung?

Support Group: Lung Cancer

Posted: Feb 21, 2023

I had an ademocarinoma tumor removed from my top right lobe and at the same time...

https://connect.mayoclinic.org/comment/1427225/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30 9:21pm

Hello @jessie1990, and welcome to the NETs support group on Mayo Clinic Connect. Carcinoid tumors are...

https://connect.mayoclinic.org/comment/1426976/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30 2:53pm

@jessie1990 No. I do not recall having lymph nodes biopsied when I had my lung biopsy...

https://connect.mayoclinic.org/comment/1430235/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3 6:28pm

I just watched lunch with docs on YouTube from CCF carcinoid cancer foundation with Robert Ramirez...

https://connect.mayoclinic.org/comment/1417594/

Discussion: DO I need 2 teams if I have both Nets-lung and DIPNECH?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 17 1:06pm

Sorry the removal was incomplete. My suggestion is ask (insist) to see a NET specialist for...

https://connect.mayoclinic.org/comment/1426993/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30 3:10pm

@californiazebra @nannybb @jessie1990 I just got off a Mayo NETs support group call. A lady was...

https://connect.mayoclinic.org/comment/1432500/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 6 6:41pm

I'm so glad I read your post just now. I am going to see my surgeon...

https://connect.mayoclinic.org/comment/1430238/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3 6:32pm

@nannybb my pet scan came back clear no other tumors or anything suspicious just the tumor...

https://connect.mayoclinic.org/comment/1430648/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4 11:43am

@nannybb I always had asthma when I was sick or exposed to many animals. Then in...

https://connect.mayoclinic.org/comment/1432474/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 6 5:50pm

@californiazebra (Hit send by accident) the large 2.6 cm tumor was more likely to spread. I...

https://connect.mayoclinic.org/comment/1427894/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31 7:20pm

@jessie1990 I want to note that after reading so many stories of both GI NETs and...

https://connect.mayoclinic.org/comment/1427890/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31 7:07pm

@jhhaas I am not sure if I am posting in the correct place. When was your...

https://connect.mayoclinic.org/comment/1433160/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7 3:24pm

@nannybb I just copied this from Mayo's website: Carcinoid tumors are a type of slow-growing cancer...

https://connect.mayoclinic.org/comment/1430781/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4 2:35pm

Hi guys is it normal to have lung pain wit typical carcinoid

https://connect.mayoclinic.org/comment/1434939/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: 5 days ago

Hello @kiholt, and welcome to the NETs support group on Mayo Clinic Connect. I appreciate you...

https://connect.mayoclinic.org/comment/1436094/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: 4 days ago

I had full surgery not keyhole to remove a 5x3cm typical carcinoid stage 2a 11 years...

https://connect.mayoclinic.org/comment/1433982/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: 6 days ago

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