Neuroendocrine Tumors (NETs) Support Group

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Comments (252)

@nannybb oh my word!!!! I am sending love during this difficult period. I do not know...

https://connect.mayoclinic.org/comment/1438650/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 14, 2025

I am currently having SBRT to radiate 2 carcinoid lung tumors that are 1.5 cm. They...

https://connect.mayoclinic.org/comment/838553/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2023

Hi, I am 76 and have typical 19 mm carcinoid lung net they want to do...

https://connect.mayoclinic.org/comment/1522926/

Discussion: Post surgery for typical carcinoid: Very tired and low energy

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9 4:32am

Hi @shella, I wanted to make sure you saw the helpful post from @merpreb. I have...

https://connect.mayoclinic.org/comment/815207/

Discussion: What tumor size is typical for removing part of the lung?

Support Group: Lung Cancer

Posted: Feb 21, 2023

Good morning 3 years ago I had an Adenocarcinoma tumor removed from my right upper lobe....

https://connect.mayoclinic.org/comment/1438478/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 14, 2025

I had an ademocarinoma tumor removed from my top right lobe and at the same time...

https://connect.mayoclinic.org/comment/1427225/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2025

@tomrennie is lung carcinoids easier to treat then GI carcinoids

https://connect.mayoclinic.org/comment/1530339/

Discussion: What's the difference between typical lung carcinoids and GI?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19 3:33am

@kdubbs Also, you do have Emory University and Winship Cancer Institute there. Because DIPNECH is rare...

https://connect.mayoclinic.org/comment/1532932/

Discussion: DIPNECH dr in GA- Atlanta

Support Group: Neuroendocrine Tumors (NETs)

Posted: 6 days ago

@stephanieann Though I have not had any surgeries for NETs, I have had a fair amount...

https://connect.mayoclinic.org/comment/1528052/

Discussion: Previous heart surgery & risks of surgery to remove lung net

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16 8:37am

@jessie1990 I only know the basics. They are both neuroendocrene tumors. GI carcinoids frequently cause digestive...

https://connect.mayoclinic.org/comment/1530121/

Discussion: What's the difference between typical lung carcinoids and GI?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18 4:50pm

@anasashesh87 I am only speaking from personal experience. cancer. Long before anything turned up on scans,...

https://connect.mayoclinic.org/comment/1496371/

Discussion: Someone can help?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 12:06pm

@hopeful33250 oh sorry thought it was lung carcinoids do you still get regular scans

https://connect.mayoclinic.org/comment/1500826/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8 10:49am

@jessie1990 I do not have lung carcinoids, but my carcinoids were in the digestive tract. My...

https://connect.mayoclinic.org/comment/1500718/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8 8:15am

@nannybb just back from gp doc said pain in my lung is nerve pain over haven...

https://connect.mayoclinic.org/comment/1448681/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 28, 2025

@jessie1990 I was diagnosed with a mass in my lung in early January a couple of...

https://connect.mayoclinic.org/comment/1440913/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 17, 2025

@jessie1990 No. I do not recall having lymph nodes biopsied when I had my lung biopsy...

https://connect.mayoclinic.org/comment/1430235/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3, 2025

Hello @jessie1990, and welcome to the NETs support group on Mayo Clinic Connect. Carcinoid tumors are...

https://connect.mayoclinic.org/comment/1426976/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2025

@kdubbs DIPNECH sounds much scarier than it is. Sloooowww growing. You’ll be around for a long...

https://connect.mayoclinic.org/comment/1394217/

Discussion: Biopsy showed DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2025

Hi , welcome to the DIPNECH club 🥴. You’ve come to the right place! I also...

https://connect.mayoclinic.org/comment/1392355/

Discussion: Biopsy showed DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2025

@jsudjian I don't see any mention of you having NETs so it doesn't seem like it...

https://connect.mayoclinic.org/comment/1378264/

Discussion: Worried about carcinoid syndrome

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 24, 2025

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