Neuroendocrine Tumors (NETs): Discussions | Page 9

I appreciate that you shared your experiences with me. I am thinking of going for a...

https://connect.mayoclinic.org/comment/859481/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2023

Hi..since 2 months suddenly i discovered that i have PNET 20 cm so they removed 2/3...

https://connect.mayoclinic.org/comment/802485/

Discussion: Recently diagnosed with PNET Grade2

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2023

I was diagnosed with a PNET in 11/2022. It is a well differentiated tumor of 1.3...

https://connect.mayoclinic.org/comment/971141/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2023

Hello, my husband was diagnosed with stage four metastatic PNET cancer last October. He has a...

https://connect.mayoclinic.org/comment/866675/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

Chemo worked for me with my pnet. I was on CAPTEM for 13 months and now...

https://connect.mayoclinic.org/comment/1030195/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 8, 2024

How are you doing now? I had my surgery to remove the tail of my pancreas...

https://connect.mayoclinic.org/comment/866297/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

I live in Canada: aside from having a Whipple / liver debulking in October 2023 and...

https://connect.mayoclinic.org/comment/1260313/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17 12:08pm

Thank you for your encouragement. It certainly helps to have people who are familiar with pNET...

https://connect.mayoclinic.org/comment/1280387/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12 6:14pm

If you are considered a candidate for surgery, my advice would be sooner than later. My...

https://connect.mayoclinic.org/comment/1065498/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2024

Hi, Did they do a PET scan ? I have stg 4 grade 1 Pnet and...

https://connect.mayoclinic.org/comment/902658/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 26, 2023

In 2000 I had 2 pituitary tumor operations. Large tumor, but they had to take out...

https://connect.mayoclinic.org/comment/780134/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 2, 2022

Sorry you are going through this also. I read also that there is a lower success...

https://connect.mayoclinic.org/comment/1027511/

Discussion: Is enucleation appropriate for me?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 4, 2024

We went to a PNET specialist at Mayo in Rochester, MN and he completely ignored our...

https://connect.mayoclinic.org/comment/979815/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2023

Hello! I was diagnosed with pNET last december (2022). Grade 2 stage 4. Had surgery on...

https://connect.mayoclinic.org/comment/896311/

Discussion: More info on gastric NET w/liver mets and progression of symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2023

Thank you for your reply. Did you have a Gallium 65 dotatase PET scan before you...

https://connect.mayoclinic.org/comment/858841/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12, 2023

I am on Creon. It was prescribed to me after surgery. I had a very large...

https://connect.mayoclinic.org/comment/952517/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

I am seeing a NET specialist in St. Louis. He sent me to a surgeon. The...

https://connect.mayoclinic.org/comment/1024868/

Discussion: Is enucleation appropriate for me?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 29, 2024

Cyst in the liver are pretty common. I have several. They are only a problem if...

https://connect.mayoclinic.org/comment/818581/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28, 2023

@retiredinkazoo - I have similar case - huge pNet on the tail ( 20x16 cm) plus...

https://connect.mayoclinic.org/comment/1075652/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2024

Update: I really like this oncologist PNET is his specialty! I like what he said to...

https://connect.mayoclinic.org/comment/1287019/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21 5:39pm

Neuroendocrine Tumors (NETs) Support Group