Neuroendocrine Tumors (NETs) Support Group

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Comments (878)

My husband just had esophageal cancer identified after a CT scan due to a car accident....

https://connect.mayoclinic.org/comment/1455605/

Discussion: Siewert type 2 Gastroesophageal adenocarcinoma

Support Group: Esophageal Cancer

Posted: Dec 7, 2025

@nannybb I really hope so to I'm so fed up did I ask you was your...

https://connect.mayoclinic.org/comment/1449010/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 28, 2025

dpepsi247 | @dpepsi247 | 1 minute ago I am still relatively new to this whole journey....

https://connect.mayoclinic.org/comment/816818/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 24, 2023

@gig666, great question. @jlsgt is right that the term carcinoid is out of favor. Here's some...

https://connect.mayoclinic.org/comment/1235902/

Discussion: Carcinoid NET changed to carcinoma: What's the difference?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2025

I'd like to add my welcome to Connect @margaret2. I'm sorry that your cancer has recurred....

https://connect.mayoclinic.org/comment/232860/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Feb 8, 2019

@gig666 How did your PET scan turn out? Was it a DOTATATE scan specifically for NETs?...

https://connect.mayoclinic.org/comment/1033637/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 14, 2024

Welcome Shella- News that is life-changing is certainly an incredible kick to the head! Especially if...

https://connect.mayoclinic.org/comment/812961/

Discussion: What tumor size is typical for removing part of the lung?

Support Group: Lung Cancer

Posted: Feb 17, 2023

Samantha- Thank you. Right now I feel very good. But I know that I could use...

https://connect.mayoclinic.org/comment/232721/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Hi, newly diagnosed NET in left lower lung. Going to see surgeon this coming week. Anyone...

https://connect.mayoclinic.org/comment/666911/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 1, 2022

@nannybb still super super bad and I've also got lung pain but gp said its more...

https://connect.mayoclinic.org/comment/1442029/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2025

@jessie1990 Great news and that sounds right for typical lung NETs. They monitor with CT scans...

https://connect.mayoclinic.org/comment/1430647/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4, 2025

Hello @kiholt, and welcome to the NETs support group on Mayo Clinic Connect. I appreciate you...

https://connect.mayoclinic.org/comment/1436094/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2025

@kdubbs I have both DIPNECH and lung NETs. Your best bet finding someone to treat DIPNECH...

https://connect.mayoclinic.org/comment/1532862/

Discussion: DIPNECH dr in GA- Atlanta

Support Group: Neuroendocrine Tumors (NETs)

Posted: 5 days ago

In reply to Blue Dane: I was very recenty diagnosed with 1 NET in my liver...

https://connect.mayoclinic.org/comment/813633/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

Hi @breck You’ve been through a lot. Sorry to hear they did not get it all....

https://connect.mayoclinic.org/comment/1169807/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

Had carcinoid tumor removed from lung last year, stage 1 cancer, lymph nodes good. Prior to...

https://connect.mayoclinic.org/comment/844635/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17, 2023

I had my middle right lobe and a part of top lobe removed in 2018, pathology...

https://connect.mayoclinic.org/comment/1287231/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2025

Hello @kathryncd and welcome to Mayo Connect. I am sorry to hear of this new finding...

https://connect.mayoclinic.org/comment/764453/

Discussion: NED GI NETS since 2012. New finding on annual chest CT, Tubular Mucoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2022

@tomrennie I agree about the second opinion with a lung NETs specialist while you wait. Not...

https://connect.mayoclinic.org/comment/1430662/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4, 2025

@jessie1990 Typical. My doctor knew I had a spot on my lung, but I don't recall...

https://connect.mayoclinic.org/comment/1438850/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 14, 2025

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