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Public Support Group 1,009 total results
Comments (931)
@kim1965 Hi kim1965 A lot has gone on since my last post. My tumor is stage...
https://connect.mayoclinic.org/comment/837243/
I've had NETs of the small intestine (Mesentery) for many years. Let me offer this hypothetical:...
https://connect.mayoclinic.org/comment/1348269/
You are correct, Somatuline or Lanreotide can produce gall stones among other side effects. How long...
https://connect.mayoclinic.org/comment/1254970/
I have Grade 2 Stage 4 pNET ( due toliver metastases) and am currently on Lanreotide...
https://connect.mayoclinic.org/comment/900598/
@penynah: Have you found any cure for the face sores after Lanreotide injections? I would love...
https://connect.mayoclinic.org/comment/1229016/
I have 5 years diagnosed NET and on Lanreotide. No hair loss. I recently switched my...
https://connect.mayoclinic.org/comment/1011772/
I’m being treated at Mayo Jax. Was diagnosed with NETs (Carcinoid Syndrome)December 2022, started in the...
https://connect.mayoclinic.org/comment/831689/
https://www.ipsencares.com/somatuline-depot-patient-support This is where you will find the program from Ipsen which helps patients get access...
https://connect.mayoclinic.org/comment/1423533/
Hi pavlina60 I just contacted my Oncologist and she said the bloodwork would show if we...
https://connect.mayoclinic.org/comment/1254826/
All the doctors, 3 oncologist and a surgeon believe it's too risky. I had some major...
https://connect.mayoclinic.org/comment/1542583/
It’s a long list! Surgery to remove the primary Y90 to address a 50% tumor burden...
https://connect.mayoclinic.org/comment/1123233/
My oncologist referred me to my primary care doctors. He eventually switched my bp meds because...
https://connect.mayoclinic.org/comment/1118231/
I have been taking Lanreotide since since May of 2022. I too have bumps under the...
https://connect.mayoclinic.org/comment/821742/
My spouse was diagnosed with GEP-NET and "heavy load" of tumors on the the small intestines...
https://connect.mayoclinic.org/comment/959684/
Hello! I have been managing PNET for 3 yrs now. Had liver debulking surgery and dystal...
https://connect.mayoclinic.org/comment/1549735/
Thank you so much for your concern. We’re glad your doctors have given you a good...
https://connect.mayoclinic.org/comment/885962/
I have had four rounds of Lutathera. I continue to be on an injection of Lanreotide...
https://connect.mayoclinic.org/comment/806746/
When will you know if the treatment was successful ? I have pancreatic with mets to...
https://connect.mayoclinic.org/comment/1007994/
My pNET is also grade 2 stage 4 with liver metastases. I had my 4th injection...
https://connect.mayoclinic.org/comment/875710/
@ant12 One more thing, lanreotide/octreotide injections can really help with carcinoid syndrome -- the flushing, diarrhea,...
https://connect.mayoclinic.org/comment/1033639/
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