Neuroendocrine Tumors (NETs) Support Group

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Hello @tomewilson, As you can imagine the Plummer Project is a massive undertaking. Mayo Clinic has...

https://connect.mayoclinic.org/comment/178242/

Discussion: Plummer Project

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2017

Hi. My son has well differentiated, grade 2 NETs. He is currently only receiving monthly Lanreotide...

https://connect.mayoclinic.org/comment/163153/

Discussion: How to get a second opinion for an international patient??

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2017

@mollie59 Hello Mollie and welcome to Mayo Connect. We have several members in our NET group,...

https://connect.mayoclinic.org/comment/160161/

Discussion: Carcinoid Cancer of the Liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2017

@hopeful33250 , @heidilynn4 , sure happy to explain my experience with Carcinoid Syndrome. It was actually...

https://connect.mayoclinic.org/comment/137531/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2017

@heidilynn4 I am in a similar situation, with only surgery so far and fearful other small...

https://connect.mayoclinic.org/comment/137529/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2017

@hopeful33250 Teresa, I SO agree with you! I am SO clear that my disease is just...

https://connect.mayoclinic.org/comment/134605/

Discussion: Take Your Mind Off of Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2017

@lucci50 Hello Ralph: I was thinking about you as you mentioned you lived in Michigan as...

https://connect.mayoclinic.org/comment/134521/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23, 2017

@tresjur Thanks for all of the good information about the retreat, etc. I just attended the...

https://connect.mayoclinic.org/comment/102002/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2016

Hello to all -- I am new to the group and interested in connecting with others...

https://connect.mayoclinic.org/comment/101992/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2016

A support group would be helpful, I think. Just to compare treatments others are receiving. I...

https://connect.mayoclinic.org/comment/101984/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 11, 2016

Yes, please get a second opinion from a NETs multidisciplinary team familiar with DIPNECH before your...

https://connect.mayoclinic.org/comment/1208016/

Discussion: Diagnosed with DIPNECH yesterday!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10 5:26am

Hello. It's wonderful to hear that you've been living with the Merkel Cell for 11 years....

https://connect.mayoclinic.org/comment/1204731/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jan 5 3:55pm

Thanks for your story! I had a biopsy done on a small bump on my nose...

https://connect.mayoclinic.org/comment/1074587/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: May 25, 2024

Roger, glad your side effects are diminishing ! Chocolate is a great place to start tasting!...

https://connect.mayoclinic.org/comment/1012937/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Feb 10, 2024

@penlandtr1, I can understand that you are concerned that you have to wait until January 8....

https://connect.mayoclinic.org/comment/987119/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Dec 27, 2023

Hi Roger, you're in the right place to connect with other members living with Merkel cell...

https://connect.mayoclinic.org/comment/956434/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Oct 30, 2023

Will receive it Tuesday, post what I learn, and go from there. If this is a...

https://connect.mayoclinic.org/comment/1074541/

Discussion: What’s the best care option for live alone senior during radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2024

I wish you all the best with this going forward. Your post made sense to me....

https://connect.mayoclinic.org/comment/1074300/

Discussion: What’s the best care option for live alone senior during radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2024

I can’t say I am totally surprised at my response to the treatment. Throughout my 75...

https://connect.mayoclinic.org/comment/895279/

Discussion: Keytruda, an immunotherapy drug, is shrinking the Merkel Cell tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 13, 2023

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