Neuroendocrine Tumors (NETs) Support Group

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Just going to say that I just finished my first week at Mayo and was SO...

https://connect.mayoclinic.org/comment/837793/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2023

Hello, i know i have posted here before. it was a while ago i believe my...

https://connect.mayoclinic.org/comment/819254/

Discussion: Linear endocrine cells hyperplasia & Autoimmune Gastritis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

Memorial Sloan Kettering rocks in general. Lots of great people. After my surgery, there were no...

https://connect.mayoclinic.org/comment/812183/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Good luck to your wife. I’ve had chemo too, but not the pill. Had injections every...

https://connect.mayoclinic.org/comment/810971/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

Wow, sounds like your son has had a really rough go. I’m sorry to hear that...

https://connect.mayoclinic.org/comment/810108/

Discussion: determination of primary site of NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2023

Hi Colleen, thank you for your kind words. We are currently trying to get him an...

https://connect.mayoclinic.org/comment/809793/

Discussion: determination of primary site of NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 11, 2023

Greetings....I am still standing and living a normal life at 85 with my disease in the...

https://connect.mayoclinic.org/comment/801669/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2023

Thank you for your comforting words. It has been a discouraging journey and over the years...

https://connect.mayoclinic.org/comment/791937/

Discussion: Frustrated with the medical establishment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 3, 2023

@outlawcancer, It sounds like you have been working on this diagnosis for a while, now. This...

https://connect.mayoclinic.org/comment/782731/

Discussion: Anyone out there have PNET experiences and outcomes to share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2022

I had a lobectomy. They did not crack my ribs to do it. They did it...

https://connect.mayoclinic.org/comment/775975/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2022

I live in Kissimmee I had made multiple trips and tomorrow need to stay at Jacksonville...

https://connect.mayoclinic.org/comment/772860/

Discussion: Might we have to Travel Twice to Mayo?

Support Group: Visiting Mayo Clinic

Posted: Nov 14, 2022

When reading your active surveillance that makes sense if my health and tumor are being watched....

https://connect.mayoclinic.org/comment/698101/

Discussion: Metastatic Poorly Differentiated small cell neuroendocrine Carcinoma,

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11, 2022

Hello All: I'm really excited for you all to attend the Carcinoid Cancer Foundation's Meet the...

https://connect.mayoclinic.org/comment/681092/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2022

Thursday, November 18, from 12 noon until 1 p.m. EST. Dr. Chandrasekharan, an oncologist from the...

https://connect.mayoclinic.org/comment/654417/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 15, 2021

Hello All: For those of you who have had surgery for NETs in the thoracic area...

https://connect.mayoclinic.org/comment/631580/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 31, 2021

Hello @ahtaylor Thank you for your response to both my question as well as responding to...

https://connect.mayoclinic.org/comment/607498/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2021

I live in Southern California and cannot find a specialist who Is experienced as the condition...

https://connect.mayoclinic.org/comment/607402/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 6, 2021

When I had my tumor removed, there was no talk about any other surgery than open....

https://connect.mayoclinic.org/comment/134718/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2021

Thank you for your response. Without going into a lot of detail right now this is...

https://connect.mayoclinic.org/comment/334984/

Discussion: Metanephrines and the beginning stages (in a way) of a tumor search

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2021

UPDATE On January 6 we met with the oncologist. They feel that it is likely that...

https://connect.mayoclinic.org/comment/329144/

Discussion: Small bowel NET and colon cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8, 2021

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