Neuroendocrine Tumors (NETs): Discussions | Page 8

The CT cu64 is a different PET scan. Chemo doesn't work on Pnet. Make sure you...

https://connect.mayoclinic.org/comment/905048/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 31, 2023

Hey all. My husband was diagnosed with NET that metastasized to liver 5 years ago. Since...

https://connect.mayoclinic.org/comment/1356472/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25 8:40pm

No I haven't. Thanks to you I've found a PNET clinic close to me and have...

https://connect.mayoclinic.org/comment/1340886/

Discussion: 1/2 Pancreas, 1 lymph node involved. What treatment would be likely?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 4 9:48am

She has a well-differentiated grade 3 PNET that metastases to the liver. There were quite a...

https://connect.mayoclinic.org/comment/934866/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2023

I was diagnosed with a small NF PNET in March 2023 via EUS. I went to...

https://connect.mayoclinic.org/comment/957715/

Discussion: Anyone have neuroendocrine tumor (NETs) of the breast?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2, 2023

@ Turkey - huge. 20×16×12 cm. It had grown over part of my stomach, vascularized. So...

https://connect.mayoclinic.org/comment/881954/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

I'm very sorry to read this latest post of yours. This is everyone's nightmare.... That the...

https://connect.mayoclinic.org/comment/879446/

Discussion: Adenocarcinoma with Neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2023

dbamos1945- I still have some hair... Before my surgery on Feb.1st I had a very short...

https://connect.mayoclinic.org/comment/869249/

Discussion: Facial and lip sores from lanreotide injections for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 30, 2023

Hi @taf, I'd like to add my welcome. I can understand your concern about the watch...

https://connect.mayoclinic.org/comment/1276003/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6 9:19pm

Hi there, I am so sorry you’re going through this with your son. Glucagonoma is indeed...

https://connect.mayoclinic.org/comment/1351010/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18 12:19pm

@milagro45pr i was diagnosed with PNET about 3.5 months ago. I went through 3 doctors through...

https://connect.mayoclinic.org/comment/809654/

Discussion: NET in body of pancreas: What are my treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 11, 2023

@laree That sounds like a really interesting and promising 2 punch approach, especially considering 25% ki67....

https://connect.mayoclinic.org/comment/1342304/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6 11:55am

I had my pituitary surgery x2, 20 years ago, and was told there is no correlation,...

https://connect.mayoclinic.org/comment/966098/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2023

Hello @jaxterdb and welcome to Mayo Connect. I appreciate your encouraging post about your experience with...

https://connect.mayoclinic.org/comment/1046297/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2024

FWIW my wife, with a grade 2 stage 4 PNET with a large tumor on her...

https://connect.mayoclinic.org/comment/1320704/

Discussion: PNET in Tail of Pancreas, Portal and Splenic Veins

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5 8:36am

Hi friend. I had a 3cm Pnet on the tail of my pancreas. It was spotted...

https://connect.mayoclinic.org/comment/1110855/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24, 2024

I'm sorry for the full plate you have to deal with. It makes me appreciate your...

https://connect.mayoclinic.org/comment/1355180/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24 8:21am

@phylissden Good to know PRRT has stabilized your condition. My son had pNet 5cm on body...

https://connect.mayoclinic.org/comment/946224/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 12, 2023

I’m sorry your husband is going through this. My husband was diagnosed with nonfunctional pnet 15...

https://connect.mayoclinic.org/comment/977137/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 8, 2023

When I first got diagnosed with a pnet that spread to my liver, I had ascites....

https://connect.mayoclinic.org/comment/1191660/

Discussion: Anyone have experience with Acites?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 16, 2024

Neuroendocrine Tumors (NETs) Support Group