Neuroendocrine Tumors (NETs) Support Group | Page 8

My CgA is extremely high however my oncologist and gastrointestinal doctors are not concerned. Reason- there...

https://connect.mayoclinic.org/comment/1345098/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 10, 2025

2 questions… 1. What were your CA-19 numbers immediately after the surgery? 2. Why did you...

https://connect.mayoclinic.org/comment/1227260/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2025

Hi @kt348 I had a similar experience during a endoscopic ultrasound of a liver biopsy. My...

https://connect.mayoclinic.org/comment/762551/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2022

@alanbeavfan I have/had acinar cell carcinoma of pancreas along with NSCAC of the lungs (diagnosed 2...

https://connect.mayoclinic.org/comment/1484242/

Discussion: Anyone have Pancreatic Acinar Cell Carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16 7:35pm

Hello, My name is Dulce I was diagnosed with neuroendocrine cancer, which started in my duodenum...

https://connect.mayoclinic.org/comment/1198506/

Discussion: Anyone have experience with Acites?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2024

Hi vtn I am sorry that this has happened to you. I am glad you saw...

https://connect.mayoclinic.org/comment/858821/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12, 2023

I had surgery (Whipple) to remove a functioning NET from the head of my Pancreas after...

https://connect.mayoclinic.org/comment/773459/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 15, 2022

@tomrennie Hi Tom, Thanks for your good wishes. I live in Las Cruces, NM and there...

https://connect.mayoclinic.org/comment/1618681/

Discussion: Anyone been advised to simply monitor a neuroendocrine tumor (pNET)?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 12 10:08am

Hi Billyfeet, I was diagnosed in 2012 with a NET on the head of the pancreas...

https://connect.mayoclinic.org/comment/842404/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2023

@jsudjian I hope you find answers quickly for your symptoms. The itching and loss of sleep...

https://connect.mayoclinic.org/comment/1402099/

Discussion: So, now just still waiting, losing my mind being worried and new quest

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 26, 2025

Hello @margariida and welcome to Mayo Clinic Connect. While I have not had PNET surgery, I...

https://connect.mayoclinic.org/comment/1547172/

Discussion: PNET grade 1: Anyone have adjuvant therapy after surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10 10:40am

Hello All, I’m set to have my 3rd PRRT treatment session at the end of June:...

https://connect.mayoclinic.org/comment/1590559/

Discussion: Has anyone had cramping pain in left side nearing 3rd PRRT treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 4 11:17am

Thank you. We were told at the consult that this could be a risky procedure. We...

https://connect.mayoclinic.org/comment/951785/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Oct 22, 2023

@drkarasheed, you may wish to join these relevant discussions: - Pancreatic Cancer: Anyone have liver metastasis...

https://connect.mayoclinic.org/comment/1304347/

Discussion: I’m living with Pancreatic Neuroendocrine Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 14, 2025

I had the Whipple October of 2024 and then 3 months later when I went in...

https://connect.mayoclinic.org/comment/1269552/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2025

I am seeing a NET specialist in St. Louis. He sent me to a surgeon. The...

https://connect.mayoclinic.org/comment/1024868/

Discussion: Is enucleation appropriate for me?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 29, 2024

Welcome to the group. I have had success controlling my blood sugar with Octreotide (Sandostatin LAR...

https://connect.mayoclinic.org/comment/1180040/

Discussion: Neuroendocrine insulinoma and MDS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2024

You have been through so much. You must be a strong person. I really appreciate that...

https://connect.mayoclinic.org/comment/859017/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12, 2023

Thank you all! I've since had an in person oncology / surgical consult, and it was...

https://connect.mayoclinic.org/comment/1277740/

Discussion: PanNET and CgA results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 9, 2025

They saw one tumor on 5/2017 via an EUS. It was 6x10mm and biopsied to confirm...

https://connect.mayoclinic.org/comment/802517/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2023