Neuroendocrine Tumors (NETs) Support Group

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Hi. I have not been told that there is any metastasis. There is a small nodule...

https://connect.mayoclinic.org/comment/1068551/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 15, 2024

I was diagnosed with non-small cell neuroendocrine lung cancer. Stage 1. I had my right lower...

https://connect.mayoclinic.org/comment/962356/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2023

melmangen The intratumoral vascular invasion is a useful prognostic factor for pathological stage 1 small cell...

https://connect.mayoclinic.org/comment/794073/

Discussion: NET (Lung + liver metastatis) Radical nephrectomy done for RCC

Support Group: Kidney Cancer

Posted: Jan 8, 2023

so very glad to hear that your cough is just occasional now. My goodness, fratured a...

https://connect.mayoclinic.org/comment/1067497/

Discussion: Describe your recovery from lung NET surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2024

You definitely need to get a second opinion from a NETs specialist. Other types of lung...

https://connect.mayoclinic.org/comment/1242687/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22, 2025

Hi! I have probably had lung nodules for twenty or more years. Three years ago my...

https://connect.mayoclinic.org/comment/1163694/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 27, 2024

@californiazebra (Hit send by accident) the large 2.6 cm tumor was more likely to spread. I...

https://connect.mayoclinic.org/comment/1427894/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2025

No I am not. My pathology after my lung surgery was sent to Mayo, and that...

https://connect.mayoclinic.org/comment/1288895/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2025

I do not have experience with ostricide shots but usually given it prior to any medical...

https://connect.mayoclinic.org/comment/1266755/

Discussion: Liver function (birirubin, globulin, glucose, iron) and Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2025

I had been diagnosed in another hospital and had half had half my lung removed. Thought...

https://connect.mayoclinic.org/comment/1169575/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

I was diagnosed with a lung disorder - DIPNECH. I’m looking to connect with others who...

https://connect.mayoclinic.org/comment/987590/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2023

Okay. Please update us when you know more details. In the meantime, know that lung NETs...

https://connect.mayoclinic.org/comment/1263033/

Discussion: Neuroendocrine cell tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2025

Lots of variety for you. Interesting (and good) that all your nodules are in one lung....

https://connect.mayoclinic.org/comment/1229577/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4, 2025

Hi Larenn, May I ask how large your lung tumor and subcutaneous nodule were? I have...

https://connect.mayoclinic.org/comment/825153/

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12, 2023

In addition to sharing more detail about your DIPNECH symptoms, in what way do you not...

https://connect.mayoclinic.org/comment/1108016/

Discussion: DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2024

Where did you do the trial at in Florida? Currently I am with Moffitt Cancer Center,...

https://connect.mayoclinic.org/comment/749790/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2022

Welcome to Connect: I was diagnosed with Non Small Cell Adnocarcinoma 11 year ago with a...

https://connect.mayoclinic.org/comment/134278/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2018

Hi. In December 2019 I had a biopsy that showed I had a 2cm non-functioning malignant...

https://connect.mayoclinic.org/comment/1067425/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2024

For anyone in the S. CA area, I had my DOTATATE PET Scan at UCLA in...

https://connect.mayoclinic.org/comment/835350/

Discussion: Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2023

Hello @cgshields1129 and welcome to the NETs support group on Mayo Connect. It sounds as if...

https://connect.mayoclinic.org/comment/1227266/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2025

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