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Comments (931)
I'm popping in late, but thought I'd link to these related discussions: - Anyone else get...
https://connect.mayoclinic.org/comment/901293/
I always tell the nurses to give my Lanreotide injection over 45 seconds or more, the...
https://connect.mayoclinic.org/comment/884554/
I had my visit with MD Anderson yesterday. They used my Mayo pathology report to determine...
https://connect.mayoclinic.org/comment/826032/
It was great hearing your Story, I go for my first follow up scan June 21st...
https://connect.mayoclinic.org/comment/854820/
I did the Lanreotide injections for 3 months Then switched To Octreotide which I am currently...
https://connect.mayoclinic.org/comment/819293/
Lanreotide monthly since dec 2023. NET currently stable after scan in May . Diagnosed in Oct...
https://connect.mayoclinic.org/comment/1104370/
Pavlina60, I also had scary hair loss beginning about a year after I started lanreotide injections....
https://connect.mayoclinic.org/comment/1126504/
I have pNET grade stage4 with liver metastases. I have not noticed any swelling. I am...
https://connect.mayoclinic.org/comment/883583/
Sounds like you're feeling really good, which is awesome. I suspect you can go to a...
https://connect.mayoclinic.org/comment/1221351/
I am 74 and was diagnosed last June with stage 4 neuroendocrine cancer grade 1, originating...
https://connect.mayoclinic.org/comment/1518565/
I use a heating pad on the injection site after lanreotide and it dissipates the lump....
https://connect.mayoclinic.org/comment/1257718/
Of course I’m not a doctor, Kim’s case is after 9 months of chemo, she had...
https://connect.mayoclinic.org/comment/877443/
@dbamos1945 Thanks for sharing. Great to hear PRRT was working for you it is likley my...
https://connect.mayoclinic.org/comment/1425169/
Hi, thank you! We did meet with the NET specialist. Still wants to give my mom...
https://connect.mayoclinic.org/comment/311789/
@pipo It's a long list. Distal Pancreatectomy Y90 to both lobes of liver Octreotide/Lanreotide Cyberknife to...
https://connect.mayoclinic.org/comment/1407713/
Hi, my husband has very similar diagnosis in Feb. Has had 1 injection, 120mg. of Lanreotide....
https://connect.mayoclinic.org/comment/1252443/
@penynah: Are you still seeing boil/sty/pimple sores on face after Lanreotide 28 day injection? This month...
https://connect.mayoclinic.org/comment/1161208/
I get the injection monthly. They warm the lanreotide and alternate the sides where they inject....
https://connect.mayoclinic.org/comment/1405171/
I have been on lanreotide for more than a year. I have no dietary restrictions. My...
https://connect.mayoclinic.org/comment/1275869/
Similar to my story! Except I also had endometrial cancer (simultaneous surgery in February 2023). So...
https://connect.mayoclinic.org/comment/1105901/
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