Neuroendocrine Tumors (NETs) Support Group

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Comments (1,791)

Hi! My name is Nancy and I live in Cape Coral, Florida. I have been to...

https://connect.mayoclinic.org/comment/39442/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2018

Thank you for reporting on the Northwoods NETs conference. I was hoping it would be live...

https://connect.mayoclinic.org/comment/179465/

Discussion: Does Y-90 preclude PRRT?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 1, 2018

Hi Faith: I went to the NIH in April, 2016. My mom never went there. She...

https://connect.mayoclinic.org/comment/163589/

Discussion: NIH clinical study looking for the gene causing carcinoid cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13, 2017

@jenchaney727 Hi Jen: I agree! It was very informative for me. I learned a great deal....

https://connect.mayoclinic.org/comment/138594/

Discussion: Panel Discussion on NETs/Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 4, 2017

Yes, @joannem, Carcinoid cancer is difficult to explain. I always say that it is a rare...

https://connect.mayoclinic.org/comment/102040/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2017

Hello @tresjur and welcome to Mayo Connect. I appreciate your attitude and the "glass half-full" approach...

https://connect.mayoclinic.org/comment/101994/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2016

Dear Gaylejean: If you would like to find a carcinoid support group in your area here...

https://connect.mayoclinic.org/comment/101983/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 11, 2016

hey @gg66, I thought I'd throw in my welcome too. I see your question generated a...

https://connect.mayoclinic.org/comment/1196626/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 24, 2024

My husband has much the same type of NET as you. It is grade 1 but...

https://connect.mayoclinic.org/comment/837108/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 3, 2023

I was diagnosed with pituitary adenoma and successfully had a large tumor surgically removed almost 15...

https://connect.mayoclinic.org/comment/610145/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2021

@nohrt4me, you will find many resources and programs for all types of cancers, including chronic management...

https://connect.mayoclinic.org/comment/697755/

Discussion: Stress Management for Cancer: Free online course from Mayo

Support Group: Cancer: Managing Symptoms

Posted: Apr 10, 2022

I had a resection in 2015 and had about a foot removed. Yes you will have...

https://connect.mayoclinic.org/comment/831318/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

Thank you very much for your reply. I am happy to hear that everything was well...

https://connect.mayoclinic.org/comment/1205704/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7 5:11am

I also have struggled with this in the past. Limiting salt can help. My surgeon suggested...

https://connect.mayoclinic.org/comment/1191512/

Discussion: Anyone have experience with Acites?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 16, 2024

Hello @jlw218 and welcome to Neuroendocrine support group on Mayo Connect. I appreciate your helpfulness to...

https://connect.mayoclinic.org/comment/1177317/

Discussion: Neuroendocrine insulinoma and MDS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2024

Hi @marciamiller I also have DIPNECH and lung NETS (cancer). I’m guessing you saw Dr. Ramirez....

https://connect.mayoclinic.org/comment/1162740/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2024

@jhhaas Good idea to get a second opinion. Glad you don’t have coughing. Octreotide also helps...

https://connect.mayoclinic.org/comment/1143685/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2024

The pain in the left arm would probably be depending on how the surgery goes. I...

https://connect.mayoclinic.org/comment/1108182/

Discussion: Sarcoidosis and Lung NET, upcoming surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2024

My goodness, you’ve had the mother load when it comes to testing. I met the benchmark...

https://connect.mayoclinic.org/comment/1104138/

Discussion: What am I missing? Possible NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 12, 2024

Hi, thank you! Yes, I do intend to address all my side effect issues with the...

https://connect.mayoclinic.org/comment/1103497/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11, 2024

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