Neuroendocrine Tumors (NETs) Support Group

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Welcome @laurell410. I look forward to learning more about you. What type of NETs do you...

https://connect.mayoclinic.org/comment/692346/

Discussion: Any NET patients from NYC

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23, 2022

@tkubista, congrats on embracing life and living cancer free. When are your next scans? What does...

https://connect.mayoclinic.org/comment/329145/

Discussion: Small bowel NET and colon cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 18, 2021

@remi @jhilbish @cvb @lenorahaston @captain1950 @khauert @tomewilson @alphanumeric @gulzar @megansims @netpatient @kate12345 @amd12 @tatteesmom3 @elm60 I'm...

https://connect.mayoclinic.org/comment/681229/

Discussion: What’s next: Seeking advice on how to navigate diagnosis appointments?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2022

Hi Steph, Do you know about the free Concierge Services at Mayo Clinic? You can get...

https://connect.mayoclinic.org/comment/610621/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2021

As you may already know ( I did reply last week ) I had surgery at...

https://connect.mayoclinic.org/comment/134708/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2020

Hello, My name is Ristene and I was diagnosed with a glomus jugular paraganglioma on 1/10/19....

https://connect.mayoclinic.org/comment/244178/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2, 2019

Hello @sherryboynton, As a survivor of three surgeries for neuroendocrine tumors (carcinoid type), I am so...

https://connect.mayoclinic.org/comment/257070/

Discussion: When to Stop Seeking out Surgical Drs...

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 23, 2019

@janlanderz how difficult it must be for both of you. Do you have a support group...

https://connect.mayoclinic.org/comment/233021/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 30, 2019

Thank you. Yes, I am creating a “new normal”, one that includes handling the treatment side...

https://connect.mayoclinic.org/comment/232996/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 14, 2019

I had somehow never seen this post until yesterday. I was diagnosed with stage 2A triple...

https://connect.mayoclinic.org/comment/232957/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jul 7, 2019

To All Members of the NET discussion group: For those of you living and/or visiting in...

https://connect.mayoclinic.org/comment/176717/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 4, 2019

Thank you Teresa. I live in Port Austin and travel 2 hours to Saginaw to the...

https://connect.mayoclinic.org/comment/184515/

Discussion: Carcinoid Cancer and working

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2018

Hello, I have a new diagnosis of an insulinoma after months of hypos in 30’s and...

https://connect.mayoclinic.org/comment/134638/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2018

Hello, I've been through diagnoses and removal of an insulinoma tumor at Mayo Rochester....I live in...

https://connect.mayoclinic.org/comment/134691/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2019

Tomorrow, June 20, at 3 - 4 p.m. EST there will be a discussion on Carcinoid...

https://connect.mayoclinic.org/comment/151194/

Discussion: Guide to Understanding Carcinoid Syndrome

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2018

I had ovarian cancer and also stage 3c with omentum removed. I’m a year and 1/2...

https://connect.mayoclinic.org/comment/246132/

Discussion: Gynecological neuroendocrine cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 27, 2019

Wow, Merry, such deep thoughts. I'm sorry that your family didn't talk about dying. I was...

https://connect.mayoclinic.org/comment/232873/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Feb 20, 2019

Good morning @hopeful33250. Good morning everyone! What a wonderful article about cancer recurrences. Thank you so...

https://connect.mayoclinic.org/comment/232868/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Feb 19, 2019

Hello, I had a 6.8cm pheochromocytoma and had a right adrenalectomy March 17th. My scans do...

https://connect.mayoclinic.org/comment/846343/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2023

Hello to all -- I am new to the group and interested in connecting with others...

https://connect.mayoclinic.org/comment/101992/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2016

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