Neuroendocrine Tumors (NETs) Support Group | Page 7

PRRT Update: Today I got the absolute best news😁 Had my PRRT follow-up appt with the...

https://connect.mayoclinic.org/comment/1374576/

Discussion: PRRT Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 19, 2025

I know this is late but Mayo Jacksonville does have PRRT. Several of my Support group...

https://connect.mayoclinic.org/comment/176728/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2019

@lu7 , hope PRRT will keep your mets at bay for more than a year. Good...

https://connect.mayoclinic.org/comment/1060666/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2024

@markmark007 Thanks for sharing your experience. My son was put on Everolimus for 2 weeks after...

https://connect.mayoclinic.org/comment/969640/

Discussion: Octreotide Injections - Skipping One or More?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 23, 2023

I'm not sure where to start this update on my husband's stage 4 NETS 31 year...

https://connect.mayoclinic.org/comment/1568169/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 6 12:12pm

Hello @caitrina and welcome to Mayo Connect. I am so glad that you found this forum....

https://connect.mayoclinic.org/comment/777852/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2022

Anyone who has had PRRT infusions have any problems with kidney damage? We have been told...

https://connect.mayoclinic.org/comment/1419352/

Discussion: PRRT Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 20, 2025

Mine is also, dr had me do PRRT, but you dr and team may feel there’s...

https://connect.mayoclinic.org/comment/1246932/

Discussion: My carcinoid tumor is inoperable: What are the best ways to control?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 27, 2025

I started the prrt treatment in 1-04-26 had second treatment 3-07-26 did not any problems.

https://connect.mayoclinic.org/comment/1526442/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 14 1:23am

My husband is currently undergoing PRRT treatment. Wondering if any of you have had this treatment...

https://connect.mayoclinic.org/comment/991109/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2024

@tfoucaul Sounds like you might have some experience with PRRT? If so, can you please share?...

https://connect.mayoclinic.org/comment/1498305/

Discussion: Stable metastatic NET – should I be pushing harder for PRRT?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4 7:35pm

I am not a doctor ...... Have you had a PET scan? Depending on results your...

https://connect.mayoclinic.org/comment/1498067/

Discussion: NETs growing despite 3 months of capecitabine and temozolomide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4 1:18pm

There are a few different types of radiation treatments. PRRT, raioembolization, cyberknife, etc. What is the...

https://connect.mayoclinic.org/comment/1374216/

Discussion: Has anyone started taking radiation therapy? Yet my doctor have plan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 19, 2025

Hi. Sorry it took me so long to reply. I traveled on Saturday to a NET...

https://connect.mayoclinic.org/comment/163157/

Discussion: How to get a second opinion for an international patient??

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 15, 2017

Hello @bnjncrew I appreciate your update. I am sorry to hear of your husband's edema. I'm...

https://connect.mayoclinic.org/comment/1047687/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 9, 2024

All the very best wishes for the 27th I did PRRT and I am stable for...

https://connect.mayoclinic.org/comment/1537213/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 28 10:41am

@zacharycat thanks. My tumors are not likely responsive to PRRT. They said most people only stay...

https://connect.mayoclinic.org/comment/1510557/

Discussion: NETs growing despite 3 months of capecitabine and temozolomide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20 2:19pm

@vinnie694 and @taracronwall. Here is an article I found on the Mayo Clinic website about the...

https://connect.mayoclinic.org/comment/1471711/

Discussion: What is the Imaging Protocol Following Completion of PRRT Therapy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 31, 2025

Hello @char1962, You mentioned that you are getting injections. Are the injections you mentioned, PRRT treatments,...

https://connect.mayoclinic.org/comment/748523/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

Hey Teresa, it seems you are active on here...I was wondering if you knew, does Mayo...

https://connect.mayoclinic.org/comment/176693/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2019