Neuroendocrine Tumors (NETs) Support Group

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Mine is also, dr had me do PRRT, but you dr and team may feel there’s...

https://connect.mayoclinic.org/comment/1246932/

Discussion: My carcinoid tumor is inoperable: What are the best ways to control?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 27, 2025

My husband is currently undergoing PRRT treatment. Wondering if any of you have had this treatment...

https://connect.mayoclinic.org/comment/991109/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2024

Hello @bnjncrew I appreciate your update. I am sorry to hear of your husband's edema. I'm...

https://connect.mayoclinic.org/comment/1047687/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 9, 2024

There are a few different types of radiation treatments. PRRT, raioembolization, cyberknife, etc. What is the...

https://connect.mayoclinic.org/comment/1374216/

Discussion: Has anyone started taking radiation therapy? Yet my doctor have plan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 19, 2025

@vinnie694 and @taracronwall. Here is an article I found on the Mayo Clinic website about the...

https://connect.mayoclinic.org/comment/1471711/

Discussion: What is the Imaging Protocol Following Completion of PRRT Therapy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 31, 2025

Hi. Sorry it took me so long to reply. I traveled on Saturday to a NET...

https://connect.mayoclinic.org/comment/163157/

Discussion: How to get a second opinion for an international patient??

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 15, 2017

Hello @char1962, You mentioned that you are getting injections. Are the injections you mentioned, PRRT treatments,...

https://connect.mayoclinic.org/comment/748523/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

Hey Teresa, it seems you are active on here...I was wondering if you knew, does Mayo...

https://connect.mayoclinic.org/comment/176693/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2019

I had net tumor on small intestine was removed with 3ft of intestine on 5/22, looks...

https://connect.mayoclinic.org/comment/753325/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2022

@ricki8: I am very interested in your healthcare. Can you tell me what your Histrotripsy treatment...

https://connect.mayoclinic.org/comment/1409058/

Discussion: So, now just still waiting, losing my mind being worried and new quest

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5, 2025

Glad you are well. Had 4 prrt treatments May-Nov, wish it was 6 like you are...

https://connect.mayoclinic.org/comment/1313432/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2025

@ericmitre1963: I hope that all the posts you have read about PRRT Lutathera cancer infusions prepared...

https://connect.mayoclinic.org/comment/1534753/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25 3:17am

My husband was diagnosed with GITract small bowel Neuroendocrine tumor Stage 4 Grade 2 well-differentiated KY...

https://connect.mayoclinic.org/comment/1120029/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8, 2024

I would also like to hear other peoples experience with the PRRT treatment. I will be...

https://connect.mayoclinic.org/comment/257015/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2020

Hello All: In the PRRT discussion, https://connect.mayoclinic.org/discussion/prrt-treatment/ we have a member from Mexico, @marifersitacastro, whose husband...

https://connect.mayoclinic.org/comment/617045/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2021

I had mentioned it to my Dr. and he recommended for my situation a PRRT treatment....

https://connect.mayoclinic.org/comment/1188950/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Dec 12, 2024

@laurell410 I hope that your doctors find an answer to your symptoms before beginning chemo. Are...

https://connect.mayoclinic.org/comment/705282/

Discussion: Any NET patients from NYC

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2022

I pray your scan will be positive. My scan in July showed progression. That is why...

https://connect.mayoclinic.org/comment/939690/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2023

Hello @ssf and @lu7, As I was not familiar with the study. I appreciate your bringing...

https://connect.mayoclinic.org/comment/829515/

Discussion: COMPOSE PRRT Lu Edotreotide Trial Study

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

I went to 2 local oncologists, 1 at Penn Medicine and 1 at Dana Farber. The...

https://connect.mayoclinic.org/comment/1216861/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2025

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