Neuroendocrine Tumors (NETs) Support Group

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Comments (209)

Symptoms are the same..but chromogranin was 30 i will have pet scan next month

https://connect.mayoclinic.org/comment/1221538/

Discussion: PNET removed 2 years ago: Can it come back at another site?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2025

Hello, good afternoon. My name is Gustavo. I am from Buenos Aires, Argentina. My wife had...

https://connect.mayoclinic.org/comment/1231924/

Discussion: Cromogranina A

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2025

Gustavo1975, there are other things that can cause an elevated Chromogranin A (such as the patient...

https://connect.mayoclinic.org/comment/1234066/

Discussion: Cromogranina A

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2025

Hello . how are you? thank you very much for responding. My wife has a date...

https://connect.mayoclinic.org/comment/1234079/

Discussion: Cromogranina A

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2025

Thank you for responding. I had no symptoms. But I had a positive colo-guard. Then I...

https://connect.mayoclinic.org/comment/1194306/

Discussion: Is there anything I can do for the bloating?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 20, 2024

Hello all, I have been on PPI's since the mid 80's when I had a perforated...

https://connect.mayoclinic.org/comment/1276226/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7, 2025

After you have the resection I assume you will start monthly injections(?), ask your Dr. I...

https://connect.mayoclinic.org/comment/1348467/

Discussion: What's next after SiNETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2025

Hi Larenn, May I ask how large your lung tumor and subcutaneous nodule were? I have...

https://connect.mayoclinic.org/comment/825153/

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12, 2023

Hello @jimmiel3 and welcome to Mayo Clinic Connect. I can certainly understand your concern about the...

https://connect.mayoclinic.org/comment/821937/

Discussion: Chromogranin A test via Quest: symptoms of NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 6, 2023

Hello @rice099 and welcome to the NETs discussion on Mayo Clinic Connect. I have moved your...

https://connect.mayoclinic.org/comment/815117/

Discussion: Carcinoid tumor of the appendix.PET scan results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 21, 2023

@sanjaykumar1 I can certainly understand your concern about the significant rise in the CgA levels, especially...

https://connect.mayoclinic.org/comment/807499/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2023

Welcome @ttdonnelly. I moved your message to this existing discussion: - High or Fluctuating Chromogranin A...

https://connect.mayoclinic.org/comment/803094/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 28, 2023

Hi, My name is Penny. My wife, Cindy, had surgery on December 6 in which they...

https://connect.mayoclinic.org/comment/797408/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2023

There are several questions on our site referring to the ChrimograninA blood test and what it...

https://connect.mayoclinic.org/comment/793189/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2023

When you say very high? What was your test result. My first Chromogranin A test result...

https://connect.mayoclinic.org/comment/792833/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5, 2023

Bette: Many thanks - your input is sincerely appreciated Sharon will have another blood draw today...

https://connect.mayoclinic.org/comment/792528/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5, 2023

Welcome, @casualsuman. Chromogranin A (CgA) is a reliable serum diagnostic biomarker for pancreatic neuroendocrine tumors. @thebobk,...

https://connect.mayoclinic.org/comment/760610/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 13, 2022

Nah, I don't Btw here chromogranin means Cga A test

https://connect.mayoclinic.org/comment/760449/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 13, 2022

My father chromogranin is 3300, After the surgery of pancreatic tumor It's been nearly 6 months...

https://connect.mayoclinic.org/comment/760419/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 12, 2022

Hello @markmark007 I appreciate the additional information about Sharon's history with NETs. It sounds like she...

https://connect.mayoclinic.org/comment/745039/

Discussion: Recommendation for Seattle Cancer Care Alliance MDs Treating NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 3, 2022

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