Neuroendocrine Tumors (NETs) Support Group

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Hi @rogo It seems like we’ve communicated in the past. I have DIPNECH and lung NETs...

https://connect.mayoclinic.org/comment/1070950/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2024

@rogo, I believe you are referring to lung carcinoid tumors with Diffuse Idiopathic Pulmonary NeuroEndocrine Cell...

https://connect.mayoclinic.org/comment/1070380/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 18, 2024

A small nodule was discovered incidentally in an x-ray 10 years ago in my left lower...

https://connect.mayoclinic.org/comment/1056356/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2024

@auntiemum, I've added your discussion to the Neuroendocrine Tumors (NETs) Support Group as well. See a...

https://connect.mayoclinic.org/comment/1045834/

Discussion: Atypical carcinoid tumour of the lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5, 2024

I did 5 rounds of sbrt for a lung carcinoid. It went very well and destroyed...

https://connect.mayoclinic.org/comment/1025801/

Discussion: My husband has had his second PRRT and is doing well!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2024

Is there a pet scan That cat scan the body to see if there are any...

https://connect.mayoclinic.org/comment/1022418/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2024

Remember to read the posts from the discussion group in my previous post, @gig666. You will...

https://connect.mayoclinic.org/comment/1022138/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2024

I also had sbrt radiation for lung carcinoids a year ago and have been on monthly...

https://connect.mayoclinic.org/comment/1003928/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2024

I had been diagnosed with 2 carcinoid tumors ...one in the lower lobe and one in...

https://connect.mayoclinic.org/comment/974703/

Discussion: Anyone with carcinoid tumors in lung and stomach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 4, 2023

Hello I too have a NET tumor on my left lung that has metastasized to my...

https://connect.mayoclinic.org/comment/955119/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 28, 2023

Hi @hopeful33250. Our story is a lot of drama so far. Around Christmas my husband had...

https://connect.mayoclinic.org/comment/872940/

Discussion: Carcinoid liver cancer/carcinoid heart disease/ kidney damage

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2023

@hopeful33250 Hi Teresa, You are correct that they did not suggest surgery for me. The reason...

https://connect.mayoclinic.org/comment/861413/

Discussion: Net unknown cause of breathing problems

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

Hi tatteesmom3, are you seeing a NETS (neuroendocrine tumor) multidisiciplinary team or just a local oncologist...

https://connect.mayoclinic.org/comment/844936/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

In ‘07 I had a bronchial Carcinoid tumor removed. It is very slow growing but when...

https://connect.mayoclinic.org/comment/831739/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Hello @pattirushing and welcome to the NETs discussion on Mayo Clinic Connect. If you are comfortable...

https://connect.mayoclinic.org/comment/831600/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Recent diagnosed with lung nodule on lower left lobe 9mm first opinion says watch / wait...

https://connect.mayoclinic.org/comment/831587/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

First time here and would appreciate any info from folks with a similiar issue. I had...

https://connect.mayoclinic.org/comment/811885/

Discussion: Carcinoid tumor of the appendix.PET scan results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Welcome @tufan, I'm sorry to hear that treatment thus far has not slowed the progression of...

https://connect.mayoclinic.org/comment/801569/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2023

@arnana54, welcome. Carcinoid tumors are slow growing neuroendocrine tumors. If they spread it is most typically...

https://connect.mayoclinic.org/comment/794083/

Discussion: Carcinoid Syndrome: Can it spread to the head?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8, 2023

Hello @kathryncd and welcome to Mayo Connect. I am sorry to hear of this new finding...

https://connect.mayoclinic.org/comment/764453/

Discussion: NED GI NETS since 2012. New finding on annual chest CT, Tubular Mucoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2022

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