Neuroendocrine Tumors (NETs) Support Group | Page 6

@hopeful33250 Yes, definitely! I was really a foodie before, and I always enjoyed cooking. But I...

https://connect.mayoclinic.org/comment/1474694/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Jan 4 8:31pm

I use Kate Farms shakes. I use the Standard 1.4. They have many different types of...

https://connect.mayoclinic.org/comment/1071269/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2024

Hello @pontiac, I would like to welcome you to the NETs discussion on Mayo Clinic Connect....

https://connect.mayoclinic.org/comment/831035/

Discussion: Neuroendocrine Insulinoma: Is treatment different for this type?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

I undergone whipple surgery of pancreatic tumor 9 month back.after 1 months of surgery the chromogranin...

https://connect.mayoclinic.org/comment/795947/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2023

I'm going thru same problems with dangerous hypoglycemia. Have had Whipple also. Only thing that helped,...

https://connect.mayoclinic.org/comment/831073/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

The same thing happened to me: I’ve been on these shots for 13 months already but...

https://connect.mayoclinic.org/comment/1288910/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2025

@nycmusic I'm thinking trial & error for when I'm cooking for my husband. Try then if...

https://connect.mayoclinic.org/comment/1532420/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Mar 21 10:07pm

On 4 July 2023 I was diagnosed with stage 4 pNET. I had a Whipple on...

https://connect.mayoclinic.org/comment/1345077/

Discussion: PRRT and lanreotide questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 10, 2025

Initially my surgeon also thought mine was non functional NET in the head of the pancreas...

https://connect.mayoclinic.org/comment/891405/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 7, 2023

Hi, I’m new to all this and I’m pretty scared. Pancreatic Neuroendocrine tumor was found by...

https://connect.mayoclinic.org/comment/799872/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2023

My dad’s going through this right now. Whipple May 2023 , one month shy of two...

https://connect.mayoclinic.org/comment/1290064/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 26, 2025

After I had Whipple surgery in 2019 the dietician suggested adding coconut to food for extra...

https://connect.mayoclinic.org/comment/988417/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2023

The 20 years is what I have heard too but I have not found proper statistics...

https://connect.mayoclinic.org/comment/1012911/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2024

My son was stage 3 when diagnosed. He went thru an unsuccessful whipple procedure because of...

https://connect.mayoclinic.org/comment/1122194/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2024

@tomrennie Olá, eu fiz a cirurgia de whipple. Tinha 4 gânglios positivo. Daí a minha procura...

https://connect.mayoclinic.org/comment/1547926/

Discussion: PNET grade 1: Anyone have adjuvant therapy after surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11 11:31am

I, experienced weight gain, depression, and muscle soreness. I was also lethargic, often lacking the energy...

https://connect.mayoclinic.org/comment/805097/

Discussion: Gynecologic neuroendocrine metastasized to lungs: Need a specialist

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

Thanks for the info 🙏 Week 7 Dr pulled 4 cm out. Pain became severe. Week...

https://connect.mayoclinic.org/comment/959020/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4, 2023

I went to MAYO in Rochester last week for a second opinion. The NET specialist and...

https://connect.mayoclinic.org/comment/1054396/

Discussion: Large Appendiceal NET, well-differentiated

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2024

My husband was told by a local general oncologist that he needed the Whipple (just said...

https://connect.mayoclinic.org/comment/800233/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2023

Hi @taf I am one of the folk’s Colleen tagged. There are several thoughts here. If...

https://connect.mayoclinic.org/comment/1276326/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7, 2025