Neuroendocrine Tumors (NETs): Discussions | Page 6

@rogo, we share a few similarities. I've also been incorrectly diagnosed with asthma for over 30...

https://connect.mayoclinic.org/comment/1268878/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 28 5:19pm

Ps- I was 74 when I had my right middle lobe removed. Although my tumor was...

https://connect.mayoclinic.org/comment/1255524/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11 11:59am

Hi @californiazebra, This is my firs post here, but my diagnosis and treatment is very similar...

https://connect.mayoclinic.org/comment/1071013/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2024

I was diagnosed with DIPNECH in November 2024 after a segmental left lung resection for 3...

https://connect.mayoclinic.org/comment/1250339/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 4 12:12pm

I was diagnosed with DIPNECH at National Jewish Health (NJH) 3/23. I've been coughing and being...

https://connect.mayoclinic.org/comment/906680/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 2, 2023

@spaztwobe I feel your frustration. It took 12 years to correctly diagnose my lung NETs and...

https://connect.mayoclinic.org/comment/1315349/

Discussion: Diagnosis Difficulties

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28 11:06pm

Hi - some people do have a chronic cough with DIPNECH. I do not have a...

https://connect.mayoclinic.org/comment/1250753/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5 7:21am

AMD, As you like know, diffuse idiopathic pulmonary neuroendocrine cell hyperplasia (DIPNECH) is an extremely rare...

https://connect.mayoclinic.org/comment/661597/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 11, 2021

Hello @grec, I'm sure you have a lot of questions about this new diagnosis. On Connect,...

https://connect.mayoclinic.org/comment/1048387/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10, 2024

It seems my first lobectomy 6 years ago was dipnech related nets, my second lobectomy in...

https://connect.mayoclinic.org/comment/1229468/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4 2:53pm

I have been diagnosed with a VERY rare lung disease called DIPNECH. Saw the expert at...

https://connect.mayoclinic.org/comment/1162603/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2024

Yes, I would say your throat clearing is from DIPNECH. Octreotide fixed that for me. Yes,...

https://connect.mayoclinic.org/comment/1330274/

Discussion: DIPNCEH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19 12:56am

Thank you so much for your reply! The oncologist made me aware that DIPNECH is a...

https://connect.mayoclinic.org/comment/772281/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2022

Welcome, @dipnech67, you are wise to seek a specialist. I'm sure you have seen the recommendation...

https://connect.mayoclinic.org/comment/1054839/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2024

Hi - I am also 75 and have DIPNECH, diagnosed Oct 2023 when I had my...

https://connect.mayoclinic.org/comment/1285320/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19 10:33am

Since you have 5 lung NETs, read up on DIPNECH which is something some of us...

https://connect.mayoclinic.org/comment/1359327/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 29 1:55pm

If you’re able, always get a 2nd opinion before surgery. My lung tumor was found incidentally...

https://connect.mayoclinic.org/comment/1209090/

Discussion: Diagnosed with DIPNECH yesterday!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11 11:59am

Hi @nana120 That's such great news to be stable!!! Sounds like the lanreotide is doing its...

https://connect.mayoclinic.org/comment/937205/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2023

@calimomma Hard to answer your question because you have a lot going on and I’m not...

https://connect.mayoclinic.org/comment/1232671/

Discussion: Relationship between endometrium cancer and DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9 1:24am

@markmark007 I take octreotide injections for lung NETS and DIPNECH. My 50+ lung tumors are very...

https://connect.mayoclinic.org/comment/966952/

Discussion: Octreotide Injections - Skipping One or More?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2023

Neuroendocrine Tumors (NETs) Support Group