Neuroendocrine Tumors (NETs) Support Group

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Comments (230)

I thought enucleation referred to eye surgery. The terms I heard for pancreatic surgery were distal...

https://connect.mayoclinic.org/comment/1344388/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 9, 2025

Olá, sim fiz cirurgia whipple para remover tumor neuroendócrino grau1. Só estou a fazer vigilância de...

https://connect.mayoclinic.org/comment/1540057/

Discussion: Terapia adjuvante/células dendricas: Treated with dendritic cells?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1 3:58am

Hang in there. A Whipple procedure can be a challenging and scary procedure. I had mine...

https://connect.mayoclinic.org/comment/799905/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2023

In 2019 a 6mm PNET was found on the head of my pancreas. In October of...

https://connect.mayoclinic.org/comment/1397878/

Discussion: New pNET so scared

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2025

I got diagnosed incidentally after having tachycardia in my doctor office. Was sent to a cardiologist...

https://connect.mayoclinic.org/comment/1348096/

Discussion: New PNET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2025

I had to keep a drain in for four months after my whipple surgery due to...

https://connect.mayoclinic.org/comment/807872/

Discussion: Surgery of PNET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2023

Hi Teresa, Dx was in 2009 when I went to the ER with worse headache I...

https://connect.mayoclinic.org/comment/933446/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

Hi - PNet diagnosis in September of ‘20 …. (4) total tumors …. Three in pancreas...

https://connect.mayoclinic.org/comment/1304507/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 15, 2025

Hi I was diagnosed with stage 4 pNET in July of 2023, I had a Whipple...

https://connect.mayoclinic.org/comment/1268507/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 28, 2025

Hi vtn, I did the watch and wait for a small PNET on the head of...

https://connect.mayoclinic.org/comment/859339/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2023

Grade 2. My Whipple went well but Mets to the liver in about a year. PRRT...

https://connect.mayoclinic.org/comment/1060558/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1, 2024

I had the whipple and chemo for 6 months. I would suggest that you stay away...

https://connect.mayoclinic.org/comment/1445506/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Nov 23, 2025

The amazing woman who diagnosed my insulinoma just from conversation ( test to prove later )...

https://connect.mayoclinic.org/comment/624497/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8, 2021

Congratulations to your son on the success of the treatment and the reduction in size of...

https://connect.mayoclinic.org/comment/1056441/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2024

I've had a Whipple and 2 colon cancer colonectomies; so very little of digestive system left...

https://connect.mayoclinic.org/comment/1483228/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Jan 15 3:54pm

Hypoglycemia when doing phyical activity. C-peptide and insulin high. Had ct scan. Told I have a...

https://connect.mayoclinic.org/comment/1525819/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13 8:43am

Hi Usaf Mine was Neuroendocrine Gastrinoma tumor & no chemo was ordered. Stopped taking Creon after...

https://connect.mayoclinic.org/comment/1122083/

Discussion: Whipple surgery with no chemo.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2024

I was tested for histotripsy by Dr Silk at NYU Langone for my 3mm liver tumor...

https://connect.mayoclinic.org/comment/1194891/

Discussion: I recently learned of histotripsy treatment for metastatic NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 21, 2024

Thanks!Each surgery and recovery is really dependent on the location of the tumor(s). My first surgery...

https://connect.mayoclinic.org/comment/134648/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2018

Seems like it is functional gastrinoma tumor and so is Jon with symptoms of diaharrea. Whipple...

https://connect.mayoclinic.org/comment/1288593/

Discussion: Gastrinomas and Whipple procedure

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2025

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